Baby Mark is 8 months old and he is fighting the most aggressive type 1 of the spinal muscular atrophy (SMA) genetic disease, which is killing his motor nerve cells too fast. From the year 2016 this disease has become curable by the innovative treatment, but this therapy is not for granted accessible in Mark's home country yet. Mark needs therapy to be started immediately and has no time to wait till the access to the efficient Spinraza medicine is opened by the local authorities through very complicated financing and procurement procedures (it already took several months from his parents to push the issue and nobody still knows how long they'll have to wait). For immediate access to the therapy Mark's parents should pay for the first infusion of this medicine by themselves, this will give their baby a bit more time to wait for further treatment. Recently his condition has become much worth, he is no longer able to move his body, it is scaring his parents, they are praying for the miracle and asking everyone to support this very urgent funding of life-saving Spinraza injection in the amount of 50000 USD.