I was afraid it was coming. My brother had it, my nephew as well. They both died at age around 15. Now my son, Matt, is in the same situation. He smiles, he grins, he cries. Like a regular kid at age 5. Except he doesn't walk. And he never will. His legs are to weak, not able to keep him up. He looks after his brother while he is running around cheering, and all he can do is watch him go. I try as hard as I can - I quit my regular job to be with my boys, but then suddenly their father left us. He told us "that this to much for him", and while the older brother has some special needs, we found news about muscular dystrophy devastating. I'm a single mum with two very special and amazing kids. Matt needs physical therapy, braces and till the end of November we need to raise funds for corrective surgery.
Matt does not understand what's going on. Despite the dystrophy he also has autism. He is very hard to reach to. He can't communicate the way other kids do.
I'm asking you, all people of good heart to support me and my two sons: Matt and Arek. You might help me cheat the destiny.