Good evening everyone! I do not even know from what to start! My son is 21 years old. All these years he is seriously ill. Heavy form of epilepsy, resistant to therapy, with a penchant for epileptic status, Drave syndrome. And all these years I bring him up myself, his father left the family, when he was 8 years old. I, of course, work, but my savings are not enough for pay for the examination and treatment in a good clinic for good specialists, because local specialists do not see the result. Therefore, except for me, Lesha has no nobode for help him to fight the disease. I have not even house, because of military actions in the Donbass, where we used to live before. we had to leave our hometown. Lesha lives in a special house where he has care, but he does not have medical treatment and examinations there.
Here is our history: from the 6th month of age, epileptic seizures with temperature, in 1.5 years - the status epilepticus 8 hours. Now this attacks start be more frequent the attacks, the myoclonus appeared. Development before 5 years was by age, only hyperactivity increased. Now dementia is at full speed ... We went to the RCCH for Moscow, but there was never a special result, so a short-term improvement with the replacement of drugs. So much has been experienced: both the statuses are heavy, and the pug is creepy from the preparations and a lot of money is spent on consultations and examinations! After 5-6 years, began to notice that it became worse to speak, it is a speech to pull, long to think over phrases. The walk also broke and speech not clear, we have so much different drugs and medicine, and, so many experiments that future show that they were wrong ..
Now Lyosha understands everything, speaks perfectly, only speech draws and long phrases builds. In everyday life, he orientates himself, desires his own words, eats himself, dresses and goes to the toilet .. But with training in no way, epilepsy in the frontal lobes that are responsible for the intellect. But, in order to keep the so-called stable state (seizures are frequent, but do not flow into the satus, at least), one must constantly take antiepileptic drugs, and periodically change their combinations! And new drugs are not available to us at all, and they need to drink regularly (in the morning and in the evening). Yes, and consultations with good specialists and examination in the clinic also cost money. There are alternative methods of treatment, for example, ketogenic diet, stimulation of the nervus vagus. Recently, surgical treatment of patients with resistant forms of epilepsy has achieved great success. But to us this is all is unavailable, due to lack of money, even for travel and living in Moscow, not to mention the payment of consultations. I am desperately seeking funds and I would now like to turn to all not indifferent people through this website.
Help raise funds for the organization of treatment and rehabilitation of my son! Thank you very much.
Alyosha's mom, Anna.