Help Our Maria Twins

Update posted by Jhayson Manlapas On Aug 01, 2017

our twins fought a very good fight. God gave us Miracle after miracle. We are truly blessed but we are still fighting heart problems for Carmela and Cranial hemmorhage and kidney disease for Camilla and on top of all this, Check up vaccines and we also left a balance to the hospital which we pay monthy. We nwed apl the help we can get financially and POWERFUL PRAYERS.

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Update posted by Jhayson Manlapas On Jul 23, 2017

Maria Carmela 1.8kgs - still w/pda,umbilical & vaginal hernia,low birth weight,possible rop.

Maria Camilla 1.5kgs - grade A cranial hemmorhage,low birth weight,high creatinine and bun level

Hooray!!! We went home 05/03/2017 eventhough Tatay and Nanay had the hardest time dealing with the hospital and settling our bills.. We were discharged. We left a large amount of credit left at the hospital and it will take our parents years to pay for it still it qas the happiesr day because we 4 will be together forever. Thank you everyone for all the love,help ans support.

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Update posted by Jhayson Manlapas On Jul 23, 2017

We (parents) do not actually know where and how to start this update bit rest assured this is very positive amd our hearts are truly grateful. We will be very detailed as we can. To begin we would like to say THANK YOU TO EVERYONE FOR EVERYTHING! For Sharing our story,this link,sharing your blessings,Praying for us,for everything.salamat po.

The twins fought a very good fight and surpassed infections,pda,pphn,cranial hemorrhage hernia and low birth weight. We were discharged May 03,2017

Carmela- 1.8kg

still with pda,umbilical and vaginal hernia.

Camilla- 1.5kg

Grade a cranial hemorrhage

The twins made very good progress and I must give it to our neonatologist and nurses for they were very hands on and they gave the twins tlc.

It has been more than 2 months since we went home and it was never easy but this is nothing compared to what our twins had to go through. God gave the twins the strength to overcome this battle who are we to give up. As a mother it was very difficult until now to sleep. I always wonder if the twins are breathing right because when we were at the nicu there were many times that i would cry because either rheir breathibg and heartrates are abnormally high or low and i was alos told that it will be normal for them to forget to breathe at times and I would just have to stimulate them to start breathing again. I held on to Prayers tgat our twins will be fine. Many even relatives did not understood isolation and why we needed to do it. Many were uneducated (we cannot blame them) about the twins being very small and thin. We were always asked if they were normal or will they be normal (can they differentiate normal to not by looking at an infant?) Many asked as to why the twins looked like how they looked and that they were not cute infants as expected... those and many other issues l have to say we just let go since it was nothing and we totally understand but at times I have to admit it was hurtful but my real concerns were

Brain development/cranial hemmorhage

ROP

Not being able to crawl and walk

Thermoregulation

Pda closing and no other heart problems

Autism

And many more...



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Update posted by Jhayson Manlapas On Apr 19, 2017

The very 1st time that one of Our twins (Maria Carmela) was able to try latching. Please Pray with us that Maria Camilla will soon latch too and that their OGT's be removed soon.It has been 3 days and it increased my breastmilk supply. God is so amazing. Thank you for our loved ones love & Prayers. Pls Continue to help us Pray for Our twins complete and fast healing. #BreastMilkisTheBest #Breastfeeding #HumanMilkforHumanBabies

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Update posted by Jhayson Manlapas On Apr 17, 2017

Maria Carmala & Maria Camilla celebrates their -st month at NICU was not ideal but We are very grateful for God and all the loved ones Praying for them becuase they are getting better each day.

Sharing with you some photos on that day and some great improvements.

Carmela is already weaned off Oxygen and Camilla is just using a funnel o2 circulating in her incubator.

ROP 1st screening showed no signs of ROo will Pray for the next screenibg to be the same and Retina specialist said their eyes are mature for their age. ☺️

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Update posted by Jhayson Manlapas On Apr 03, 2017

Maria Carmela

Still with oxygen help but only indirect funnel with very low setting. Hopefully soon she can breathe with no difficulty on her own.

Todays Xray shows improvement. The doctor said she is getting there.

The doctors said they can still hear murmurs in her heart which means the PDA (whole in her heart) is still there but the murmur sound is now shorter and slower which may mean the whole is getting smaller and they also said that there is a great chance that whole closes on its own. This will be confirmed through 2decho a week after their 1st monthsary.

Carmela started feeding again after 3 days of not feeding but she started in the beggining that is why she lost a little weight she started at 2ml every 3 hours and the increase is 1ml every 24hours.

Maria Camilla


Still with oxygen help but only indirect funnel with very low setting. Hopefully soon she can breathe with no difficulty on her own.

Todays Xray shows that her lungs are well!

The Doctors said that they can not hear any murmur in her heart this may mean that the PDA (whole in her heart) may already be closed. :) This will be confirmed through 2decho a week after their 1st monthsary.

Her BUN is already normal but creatinine still a little high but the doctor said it is not right aaay that they Creatinine will normalize. We will check again after a month.

Camilla Started feeding again after 24 hours of not feeding but she started in the beggining that is why she lost a little weight she started at 2ml every 3 hours and the increase is 1ml every 24hours.

Both the twins still have episodes of apnea and bradycardia but still they are better now than before. God sends Our twins miracles everyday. Thank you everyone for your help. The doctors said thay will and should gain weight and we will do it alowly but surely and Pray that there will be no more infections and complications.


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Jhayson Manlapas

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