..DEAR FACEBOOK FRIENDS,
...this is our story ...
Who would have thought this jolly, adorable brave and lovely baby is hiding his pain in such a young age, Our own child suffers from birth until now and has a limited existence here on earth...
Her name is Yhiuna Grey Atienza-Gaspar 5months Old Baby born last Novemver 17, 2018.
last February 22,2019 we addmited at the regular ward at Calcutta medical center in San Fernando Pampanga and treated as a case of pneumonia and Epilepsy. titrated to oxygen support due to Her Multiple Seizure Episodes.
My Daughter reffered to cardiac service for co management, He also reffered to Neurologist. The ff: medication were continued. Then they noticed of episodes of wheezing, harsh breath sounds and retractions and Many Episodes of Seizure We experience to transfers to treatment room due to respiratory distress and Many Episode of her Seizure. She Tranfers at PICU due to her having a multiple episodes of Seizure Until Yhiuna underwent of venous cut down ( March 03,2019 )due to difficulty of reinserting I.V.
and Yhiuna Undergo A Test of EEG and They Seen that Yhiuna had a Brain Infrastractural Problem.
Then After a 3Weeks of Medication in Calcutta Medical Center in San Fernando Pampanga We decided to transfer Our Daughter to the other Hospital in Manila,Quezon City @ Philippine Childrens Medical Center.
and My Daughter Undergo Again a New Medical and General Test that why we Back to Zero.
My heart breaks seeing her like this.....She's been through lots of pain,test, limited amount of liquid feeding, blood transfusion. Our world turned upside down because of what's happening to our daughter. But we know that God has a purpose..and prayer, faith is our weapon...
this year March 2019, God answered prayer. She had clinically improvement and was eventually weened in severe pneumonia, and no antibiotics support. but with straydor, desaturated and difficulty of breathing hence she retubated and She hooked on mechanical ventilator on SIMV mode with High setting.
March 2019 She need to repeat all the lab. test and She Undergo the Brain CTS SCAN, the result is my Daughter is Suffering a Brain Deffect that Cause of Her Seizure And all Of the Doctors of My Daughter in Neurologist told me that She is Having a Migrating Focal Seizure of Infancy 😫😱😰because her Both Left and Right Brain are Migrating the electric energy in the brain that can cause of her Many Episodes of Seizure and my daughter can't control the Seizure.😭😭😭and Her Eye Sight is already Affected.
And Now April 17,2019 The Doctors Told me That my Daughter is Suffering a Dysautonomia This is because of the complications on Her Brain.Because of Her Many Episodes of Seizure.
In One Day she had many Episode of Seizure
(86 Times of Episodes A Day 1min to 2 mins. per Episodes)
<<<•Dysautonomia or autonomic dysfunction is a condition in which the autonomic nervous system (ANS) does not work properly. This may affect the functioning of the heart, bladder, intestines, sweat glands, pupils, and blood vessels.•>>>
and One of Her Medication Medicine of My Daughter is Came from Abroad @ India and the price cost is too high..
And Yhiuna is Also will Undergo a Surgery Soon..
-Tracheostomy for Her Lungs
-Gastrostomy for Her Feeding
Target Month This April or May of 2019
and all the Doctors, They said that We need to provide a mechanical ventilator with oxygen tank at home to sustain his breathing and to continued the medication for Brain and Lungs.
We need to prepare the following :
Respiratory Mechanical Ventilator Machine☑MODEL:
⚫PORTABLE HT50 VENTILATOR (estimate cost P130,000) (second hand)
⚫LARGE TANK ( monthly cost P10,500.00)
⚫GENERATOR ( for 5,000watzz P20,000)
⚫TRACHE SHILLEY NEO 3.5
(change every 3mos cost 2,500)
⚫Gloves[130pesos Per 1BOX]
⚫Gauze Pads[200pesos Per 1Box100pcs]
⚫Suction Tubing[300pesos Each]
⚫And The Following is The Milk Needs of Baby Yhiuna Grey
-Beneprotien.227g.-(980 Pesos Each)
-MCToil500mg.(900 Pesos Each)
-Nutramigen400g(1166 Pesos Each)
⚫Continue home medication..etc.
That's why I am posting this, doing every way I can, we are emotionaly and financially drained since she admitted at Calcutta NICU for 21 days with hospital bill P350,000 (since 3Months Old)
then admitted to pcmc PICU March 3,2019 up to present..We already pay the Hospital Bill of P385,000(when Yhiuna is in the mode of payment of Pay.) a total of 735,000..
and Now We already Transfered in The Charity Modes of Payment and now we have a P950,000 running bill.
"knocking on your kind hearts," hoping to come up with the amount needed in order to help my Daughter's need.
You can deposit your financial help thru:
•(002111-066-237)-Sherwin E. Gaspar
Please message us on this page or contact us at (09060198677)
"ALL PROCEEDS BE SURELY ON HIS MEDICAL NEEDS"
GODBLESS YOU ALL...