My son Max, who was welcomed to the world last February 24, 2018, was born with a congenital birth defect called Cleft Palate. His palate was not developed and has a hole that was making it difficult for him to feed. For his first couple of days he was feeding through a tube as we had to find a specialized bottle for him so he can feed normally even with the hole inside his mouth.
Max was under the care of 4 doctors when he was born as all had different specialties to make sure that no infection starts or grows in the affected part of the hole. It was then advised by the ENT that on Max's 3rd month, he will be recommended to see a pediatric dentist to create a dental prosthesis in hopes of covering the hole caused by the missing palate and make Max get used to sucking and and the eventual feeding of solid food.
It was made known to us that if Max got the hang of the prosthesis it will have to be adjusted on a monthly basis in expectation of his monthly growth. The prosthesis will have to stay on for 7 months because the Pediatric Surgeon recommended that Max have his Cleft Palate surgery on his 10th month.
Along with the surgery, the surgeon will also address Max's tongue as he's also what's clinically called Ankyloglossia or tongue-tied to the tip which is also a congenital anomaly. And after his surgery, Max will have to be enrolled in speech therapy to make sure he'll be able to talk like everyone else.
We were allowed to bring home Max but under the condition that he visits his pedia once a week to check for any infections in his ears, mouth and throat. We were also advised against taking Max outdoors as anything he inhales has a tendency to lodge in either his mouth or ears that's why he just stays inside the room.
We are in search for extra resources for Max's continuous medical needs as well as preparation for his prosthesis, surgery and speech therapy. Any kind of help is greatly appreciated and a simple prayer for Max's continued growth and improvement will bring so much joy and strength to us.
As a parent, I will move mountains for my son's right to have a fighting chance at life. With God's grace and mercy, He will continue to send instruments to make the impossible happen for us. Thank you for your support and may God Bless Us All.