Make a wish for Matteo, living with MDS, a rare genetic disorder
Fundraising campaign by
David Covini
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€16,950raised of €20,000.00 goal goal
The campaign owner has stopped the page from accepting further donations. Please contact them if you'd still like to donate
Campaign Story
Deutsche Version unten
Version française en bas
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English version:
This year, I am wishing for cars, for books, for Play-Doh...but secretly what I want the most is a life without pneumonia, without threat of seizures, without a wheelchair in the horizon...just a long and healthy life.
My family is wishing for many more Xmas with me standing next to them. They wish we could sleep for 100 years while researchers bring experimental drugs into clinical use...Waking up in a world with a cure for MDS (MECP2 Duplication Syndrome).
MDS is a rare and progressive genetic disorder. Time is running for me and my MDS-buddies.
Make a wish for Matteo.
Please join and share this fundraiser for dupmecp2.eu (Association "Lasst uns MDS heilen-Let´s Cure MDS") and contribute to enhancing quality of life of children with MDS by funding research projects and infrastructures for kids with genetic disorders.
More details about our association: www.dupmecp2.eu
Follow us:
Facebook: https://www.facebook.com/dupmecp2
Instagram: https://www.instagram.com/dupmecp2/
https://www.instagram.com/matteo_mds/
Deutsche Version:
Dieses Jahr wünsche ich mir Autos, Bücher, Play-Doh ... aber insgeheim wünsche ich mir am meisten ein Leben ohne Lungenentzündung, ohne drohende epileptische Anfälle, ohne einen Rollstuhl am Horizont ... einfach ein langes und gesundes Leben.
Meine Familie wünscht sich noch viele weitere Weihnachten mit mir an ihrer Seite. Wir träumen davon, 100 Jahre lang schlafen zu können, bis die Forscher die laufenden Untersuchungen abgeschlossen haben ... Und in einer Welt aufzuwachen, in der es ein Heilmittel gibt, um MDS (MECP2-Genduplikationssyndrom) zu besiegen.
MDS ist eine seltene, progressiv verlaufende genetische Erkrankung. Die Zeit für mich und meine Freunde, die an derselben Krankheit leiden, läuft ab.
Wünschen Sie sich etwas für Matteo.
Machen Sie mit und teilen Sie diese Spendenaktion für dupmecp2.eu (Verein "Lasst uns MDS heilen"), um dazu beizutragen, die Lebensqualität von Kindern mit MDS durch die Finanzierung von Forschungsprojekten und Infrastruktur für Kinder mit genetischen Krankheiten zu verbessern.
Weitere Informationen über unseren Verein: www.dupmecp2.eu
Folgen Sie uns:
Facebook: https://www.facebook.com/dupmecp2
Instagram: https://www.instagram.com/dupmecp2/
https://www.instagram.com/matteo_mds/
Version francaise:
Cette année, je souhaite des voitures, des livres, du Play-Doh... mais secrètement, ce que je souhaite le plus, c'est une vie sans pneumonie, sans menace de crise d´épilepsie, sans chaise roulante à l'horizon... juste une vie longue et en bonne santé.
Ma famille souhaite encore beaucoup d'autres Noëls avec moi à ses côtés. Nous rêvons de pouvoir dormir pendant 100 ans, le temps que les chercheurs finalisent les recherches en cours… Et se réveiller dans un monde où il existe un remède pour vaincre MDS (syndrome de duplication du gène MECP2).
MDS est une maladie génétique rare et progressive. Le temps presse pour moi et mes amis atteints de la même maladie.
Faites un vœu pour Matteo.
Rejoignez et partagez cette collecte de fonds pour dupmecp2.eu (Association "Lasst uns MDS heilen-Soignons MDS") afin de contribuer à améliorer la qualité de vie des enfants atteints de MDS en finançant des projets de recherche et des infrastructures pour les enfants atteints de maladies génétiques.
Plus de détails sur notre association : www.dupmecp2.eu
Suivez-nous :
Facebook : https://www.facebook.com/dupmecp2
Instagram : https://www.instagram.com/dupmecp2/
https://www.instagram.com/matteo_mds/
Fundraising Team
- David Covini
- Vienna, AT
My wife and I created DupMECP2, an organisation that supports MECP2 Duplication Syndrome community by funding research and supporting families.
My wife and I created DupMECP2, an organisation that supports MECP2 Duplication Syndrome community by funding research and supporting families.
- Caroline Covini
- Fundraiser manager Deputy
- Vienna, AT
We founded our association after receiving the diagnosis of our son. Among others, we aim to help MDS community and bring clinical trial to Europe,
We founded our association after receiving the diagnosis of our son. Among others, we aim to help MDS community and bring clinical trial to Europe,
Donors
- Jimmy Khim
- Donated on Mar 08, 2023
Please may him be cured of his sickness.
- Ella Rosenzweig
- Donated on Feb 19, 2023
Dear Matteo, above all, we wish you health and finding a cure for the mds syndrome. Your family is extraordinary.
75% of our goals reached!!!
Update posted by Caroline Covini at 11:08 pmMany many thanks for your contribution to the fundraiser. We have reached 75% of this first goal! It is really amazing! Do not hesitate to share this link to help us reach 100%! Participate and share this fundraiser to help improve the quality of life for children with MECP2 duplication. . . . .
50% of our goal reached!!!
Update posted by Caroline Covini at 10:02 pmAs 2023 has just started we look back at what we have achieved together. hank you all for your support to the fundraiser we have started before Christmas. Over 100 donors and more than 50% of our goal was reached in a week, it is simply amazing. Many many thanks,. . . . .
Donors & Comments
- Anonymous
- Donated on May 01, 2023
Happy birthday petit Matteo d’amour 🚗♥️
- Jimmy Khim
- Donated on Mar 08, 2023
Please may him be cured of his sickness.
- Ella Rosenzweig
- Donated on Feb 19, 2023
Dear Matteo, above all, we wish you health and finding a cure for the mds syndrome. Your family is extraordinary.
- Fabrizio Bonali
- Donated on Feb 09, 2023
- Anonymous
- Donated on Feb 04, 2023
- Maya Leu
- Donated on Feb 01, 2023
Hello David, j’aimerais participer à votre collecte , mais vu que c’est écrit tout en anglais, j’espère que ma petite aide vous parviendra? Sinon on fera autrement? Courage à vous chers parents, qui doivent combattre, cette injustice.. 😒 Amitiés, Maya.
- Anonymous
- Donated on Jan 31, 2023
- Myriam Chikirou
- Donated on Jan 29, 2023
- Anonymous
- Donated on Jan 28, 2023
- Anonymous
- Donated on Jan 27, 2023
Happy birthday petit Matteo d’amour 🚗♥️