Mainz-Brussels Bike Ride for the European Haemophilia Consortium
Fundraising campaign by
Marijn van der Sluijs
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€390.00raised of €360.00 goal goal
Campaign Story
Together with a team of Sobi colleagues, I will be cycling about 390 km from Mainz to Brussels over three days from Tuesday 2 to Thursday 4 October in order to raise money for the European Haemophilia Consortium (EHC). The funds are used to support projects for increased physical activity and an active life style for haemophilia patients.
This is the third stage of the Sobi Charity bike ride for Haemophilia that started in 2016 from London to Paris, continued in 2017 from Paris to Brussels and now in 2018 we cover the distance from Mainz to Brussels. What is new this year is that EHC and representatives from National Member Organisations (NMOs) will join us for the last 30 km ride to arrive in Brussels where the EHC annual meeting will take place on October 5-7.
About the EHC
The European Haemophilia Consortium (EHC) is an international non-profit organisation that represents 45 national patients’ organisations of people with rare bleeding disorders from 27 Member States of the European Union (EU) and most Member States of the Council of Europe. The EHC represents approximately 90,000 people diagnosed with a rare bleeding condition such as haemophilia, von Willebrand Disease (VWD) and other rare bleeding disorders across Europe. However, it is estimated that many more live with an undiagnosed rare bleeding disorder.
About haemophilia
Haemophilia is a type of bleeding disorder in which the blood does not clot properly. When a person with haemophilia bleeds it takes longer than normal for the bleeding to stop. This is because people with haemophilia don’t produce enough of an important protein that helps the blood to clot, called a ‘clotting factor’. Haemophilia is a rare disease that is usually inherited and is more common in males than females.
About Sobi in haemophilia
Sobi Haemophilia is part of Sobi, a specialty pharmaceutical company based in Stockholm, Sweden. We want to contribute to a world where all people with haemophilia are diagnosed and receive effective treatment and life-long support to live a full life, free from limitations. Since 2006, Sobi has been working with Bioverativ and has developed a new generation of haemophilia treatments. Sobi’s history of innovation in haemophilia is the foundation for our pioneering research today and for our long-term commitment in supporting the haemophilia community.Organizer
- Marijn van der Sluijs
- Campaign Owner
- Sollentuna, SE
Donors
- Charlotte Pahl
- Donated on Oct 29, 2018
- Paul Cox
- Donated on Oct 17, 2018
Well done Marijn!! (and everyone else) Best wishes from an old Sobi friend
- Carin Dahlquist
- Donated on Oct 14, 2018
Well done Marijn!
No updates for this campaign just yet
Donors & Comments
- Charlotte Pahl
- Donated on Oct 29, 2018
- Paul Cox
- Donated on Oct 17, 2018
Well done Marijn!! (and everyone else) Best wishes from an old Sobi friend
- Carin Dahlquist
- Donated on Oct 14, 2018
Well done Marijn!
- Marina Auer
- Donated on Oct 10, 2018
- Fabrizio Capetta
- Donated on Oct 09, 2018
Great job! It's really inspiring...
- Mikael Åstrand
- Donated on Oct 05, 2018
Very well done! Good job organizing the bike trip once again
- Carin Junestrand
- Donated on Oct 04, 2018
What a great initiative again! I hope all of you in the Sobi team will enjoy the ride for such a good cause.
- Christine Boström
- Donated on Oct 03, 2018
Fantastic that you arranged the Charity ride this year too! Hope you have a wonderful trip.
- Katrin Andrén
- Donated on Oct 03, 2018
Good luck Marijn!!
- Marijke Leenders
- Donated on Oct 01, 2018
Good luck to all of you!!!