London-Paris Charity Bike Ride
Fundraising campaign by
Kim Ada Tveten
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kr4,350.00raised of kr5,600.00 goal goal
No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities
Campaign Story
During August 26-29, 2016, I will be participating in a fundraising event by biking from London to Paris in order to raise money for the European Haemophilia Consortium (EHC). A number of colleagues from Sobi and I will be biking 377 km, departing from London on Friday August 26, riding through the beautiful English and French countrysides and celebrating the completion of the challenge at the Eiffel Tower on Sunday August 29.
About the EHC
The European Haemophilia Consortium (EHC) is an international non-profit organisation that represents 45 national patients’ organisations of people with rare bleeding disorders from 27 Member States of the European Union (EU) and most Member States of the Council of Europe. The EHC represents approximately 90,000 people diagnosed with a rare bleeding condition such as haemophilia, von Willebrand Disease (VWD) and other rare bleeding disorders across Europe. However, it is estimated that many more live with an undiagnosed rare bleeding disorder.
About haemophilia
Haemophilia is a rare congenital bleeding disorder that occurs in people with a limited amount of either clotting factor VIII (haemophilia A) or clotting factor IX (haemophilia B). Having haemophilia means that an individual’s body cannot naturally stop the bleeding that occurs once a blood vessel is damaged. These bleeds can be caused both by trauma and stress. If the bleed is not stopped and properly managed it can result in damages to the joints (such as ankles, hips and knees), which can cripple an individual (to the extreme an individual is at risk of losing limbs such as legs and arms) and limit his or her range of movements. Furthermore, intracranial bleeds can be both debilitating and fatal.
About Sobi in haemophilia
Sobi Haemophilia is a part of Swedish Orphan Biovitrum AB (Sobi), a specialty pharmaceutical company based in Stockholm, Sweden. We have a history of innovation in haemophilia that stretches back more than 50 years. Today, we continue to build on that history through a global partnership with Biogen, an American biotechnology company, to provide new treatments for haemophilia.
Organizer
- Kim Ada Tveten
- Campaign Owner
Donors
- Anonymous
- Donated on Sep 04, 2016
- Katrine Føland
- Donated on Aug 18, 2016
- Åse Merete Tefrum
- Donated on Aug 18, 2016
No updates for this campaign just yet
Donors & Comments
- Anonymous
- Donated on Sep 04, 2016
- Katrine Føland
- Donated on Aug 18, 2016
- Åse Merete Tefrum
- Donated on Aug 18, 2016
- Anonymous
- Donated on Aug 09, 2016
- Anonymous
- Donated on Aug 09, 2016
Go Go Kimma!
- Anonymous
- Donated on Aug 09, 2016
Keep up the good work!
- Anonymous
- Donated on Aug 08, 2016
- Anonymous
- Donated on Aug 08, 2016