US$170.00raised of $2,100,000.00 goal goal
Hi friends, my name is Ignacio Munoz Martinez. I am eight months old, and I live in Curico, Chile, with my mom, dad, and our dog, Kira. I was diagnosed with Spinal Muscular Atrophy type 1 (SMA). This is the most severe type.
SMA is a degenerative genetic disease that affects the neurons in charge of moving my body. I will progressively lose strength to move not just my limbs and head but also my ability to eat and breathe. My disease does not have a cure. However, there are treatments for it, and this will slow down the progression of SMA. letting me live longer with a better quality of life, so I can spend more time in this world with my parents (I am an only child).
Without treatment, my life expectancy is LESS THAN TWO YEARS! Unfortunately, nowadays in my home country, Chile, no insurance or government program will help us pay for the treatments that I need.
I need a medication called Zolgensma, which is the most expensive treatment in the world! , and it costs 2.1 million dollars. PLEASE help me achieve this goal, so it can prolong my life with my family and they can watch me grow and be a happy kid.
*** Dear friends: Our family would like to ask you please donate to our cause using a PayPal account only. The reason behind this is that only through PayPal we are able to retrieve these funds; otherwise, they will be rejected, leaving PayPal as our only option to get donations. Thank you for your understanding and for helping us get Nachito the medical treatment he needs to live longer.
Please help me and share my story!!
I still need your help!Update posted by Camila Martinez Sierra at 10:00 pm
Please go and check my instagram https://www.instagram.com/juntosxnachito/I still need your help!