₱1,500.00raised of ₱5,000,000.00 goal goal
June 2 of this year, Khalil was diagnosed with Cholestatic Jaundice; Neonatal Hepatitis secondary to CMV Infection. We were told 1/3 of the patients with this disease deteriorates, 1/3 stays the same, and a 1/3 improves. I think it's harder being told "we will have to wait and see what happens" than knowing an exact gameplan. But with faith in our baby and in God, we held on.. he was on a LOT of maintenance medications, but not one day, not one dose missed. For two whole months and after 2 bouts of pneumonia.. there were days he was ok, smiling and playful like any other normal baby.. His blood levels/components stabilised, but his other liver function test results remain unchanged. It very much seemed like 1 step forward, 2 steps back.
On Khalil's follow up appointment yesterday, our worst fears were realised. His liver condition - from moderately ok is now starting to be severely impaired. He has developed portal hypertension, and is suspected of GI bleeding already based on the color of his stool.. His pedia gastroenterologist broke the news that in his opinion, Khalil should be referred to a hepatologist / surgeon outside the country for a Liver Transplant. This procedure would cost 5 million pesos in India and in Taiwan.. He needs to be operated on by September - October this year, for a much better chance of survival.. We expected this news might come, but it's still extremely hard to take when it does Yet another fight my sweet little bunso has to take head on in his short life so far.
Now, I am humbly asking you, to help my little one get a new liver.. a new shot at life.. that he may be able to celebrate his 1st birthday and many more birthdays with us, his family.. while i know that prayers can move mountains, we are also in need of financial help.. No matter how big or small the amount, your help would be highly appreciated..
For direct donation, you can send it to:
BDO account #: 008130149074
BDO account name: Klay Khalil G. Lustre
Bank code: 010530667
Swift code: BNORPHMM
BPI account #: 9969149483
Bank code: 010040018
Swift code: BOPIPHMM
PayPal account: PayPal.Me/khalilchikins
- Christopher Lustre
- Campaign Owner
T-shirts fundraising campaignUpdate posted by Christopher Lustre at 03:53 am
As time is of the essence for my baby khalil's life, We're setting up this fundraising campaign for his liver transplant. Financial donations keep on coming, but as we all know, millions aren't that easy to raise. Help out by putting on a shirt! These shirts are for 300 php
August 26, 2018 - Khalil's ChristeningUpdate posted by Christopher Lustre at 03:47 am
a break from the gloominess, despair and sadness.. a day celebrated for my baby bunso...i know khalil felt all the joy, warmth and light of our family, relatives and friends who came.. thankyou all somuch for being with us in this journey thru your love, thoughts and prayers Welcome to
August 21, 2018Update posted by Christopher Lustre at 03:05 am
you're back at the hospital again, my bunso. 💔 the complications are gonna keep on coming til you have your new liver.. pero fight lang bunso ha, kaya mo yan! hold on baby..konti na lang.. fighting for you everyday is not easy anak, this is a battle we didn't choose,. . . . .
FOR IMMEDIATE LIVER TRANSPLANTUpdate posted by Christopher Lustre at 05:23 am
Instead of playdates, what you got were hospital trips.. 😔 seeing you have to take awful medications and undertake procedures that make you feel uncomfortable, is just 💔😭 If we could switch places with you anak, you know we would.. no questions asked.. but for now, we will hold your. . . . .
Donors & Comments
Create a support campaign in seconds!
Support campaigns allow you to get your own fundraising page dedicated to 'Baby Klay Khalil’s Fight'
You'll have your own unique link that you can share, and all funds raised will go directly to 'Baby Klay Khalil’s Fight'. It's the ultimate way to show your support!Create support campaign