Infantile Seizures secondary to Hypoxic Ischemic Encephalopathy

Hello friends, family, and associates. This is ayesha's mom. Nothing hurts more to a mother seeing their child is suffering. Have you ever heard a baby who got H.I.E? yes. it is irreversible but we believe in miracles and God's grace.

April 6, 2019 7:00am when I gave birth to ayesha, full termed, 39 weeks, via nsd in a maternity home, and baby is not crying when she got out, after 30minutes when I heard her cry but not spontaneously crying. Due to lack of devices they rushed my baby to the hospital in Adventist Medical Center Manila (former Manila Sanitarium) because of suspected sepsis, neonatal pneumonia, and episodes of seizure. It was so sad when we tried to latch, she can't latch because she was gasping for air and breathing very fast.

24hrs postpartum before I was able to see my baby. Nothing hurts more seeing my baby suffering just right after I deliver her to the world. Is it my fault? I should have been prepared. I should have done better preparations but no. With our lack of budget, and didn't expect this to happen baby Ayesha got admitted in PICU because we can't afford NICU rates. Her body is very flexed and very tough she really can't move, her fontanel is hard due to increased intracranial pressure. The attending physician wants to do a lumbar puncture but can't because Ayesha is too stiff to bend. And so, the attending physician told us for second opinion that baby Ayesha will go through 3 antibiotics via IV line for 3 weeks to secure the brain from any occuring infections, and also gave baby Ayesha doses of phenobarbital for her seizures. It took her 4days before her respiratory rates goes down to normal, from 80-90 to 40-50bpm. And also 4 days before I get baby Ayesha to latch on me. I can see her in her first latch that she was so glad and comforted from all the IV re-insertion and lumbar puncture. It was heartbreaking that we can't have that bonding of mom and child for the first hour. But now, seeing her latch so perfectly and calmly made me at ease.

As of today, November 11, 2019. Baby Ayesha is 7months old but she still have cluster of seizures everyday despite of taking phenobarbital. She still can't put her head up nor sit down-assisted. We were encouraged by her pediatric neurologist to have her to a pediatric physical therapy and occupational therapist as long as she gets better. There is still no assurance for us, but according to her attending physician, there is a chance of cerebral palsy, which is irreversible, but we are trying our best to support her medical needs as much as we can.

Ayesha Mikaela Tejano is her name and it means, "Life, gift from God".

We - Me, my husband and family, ask for your generosity as we are still indebt in the hospital and baby Ayesha needs to have 3 times a week of physical and occupational therapy as long as she gets better.

Other than any monetary donation, your prayers for Baby Ayesha Mikaela's full recovery will also be greatly appreciated.

With love and gratitude.