Hello . My name is Maya and I terribly need your help . First of all excuse my English since I am not an English speaker . I am 24 years old , I am positive , responsible , emotional ,overly ambitious young girl. The power of me is that I have heart full of love , love to life. But my disease makes me feel like I am a caged bird. I see how life is beautiful and how much I can do but … I was born with congenital dislocation of both hip joints.
I start from a little background. In 90th two young people married .My mom was beautiful independent lady with long black hair and my father young handsome teacher with good prospects for the future. They bought a house and started to build the family. In a year after they got the baby , it was me. As my mom says I looked like a sun, so bright and smiley with blonde curly hair and blue eyes . Everybody around loved me. I was growing up as a normal baby until my parents took me to the doctor to check the health, then they got the diagnosed. They put me into cast for two years . I wasn’t able to walk . I couldn’t understand what’s going on and why I can’t move , for things wouldn’t get so boring my mom set me on a chair in the yard with other kids and I was watching how they run ,how they happily play in catch-up and scream , I could only watch it. I was sad so mom raised me to hands and run with children. Time was going but we didn’t see the improvements .
My parents were young and hadn’t enough money for taking me to Europe , they were working hard, they sole everything they had and moved to Ukraine cause that time there was better medicine and not so expensive as in different countries . They had 3 jobs, they were working without days off or rest. After 3 years we finally started the treatment.
Since I was 11 years old I had 16 operations . I will never forget that day ...It was raining outside, I was laying on a hospital gurney waiting for an injection. Blurry vision , smell of drugs and people like zombies stucked down in their own sadness . Couple minutes later I found myself in a large cold room ,a huge lamp shore to my face , I couldn’t feel my body , nurses dressed in white were fussing around me, I only saw their eyes and iron tools. I got injection and then everything has smoothly disappeared. The operation lasted about 15 hours. I woke up two days later, in the ward couple patients lived beside me, some of them cried some laughed. I did not stay in consciousness for a long time because I was constantly pricked with strong medications. In a couple of days I was reduced to a dose of medication and I began to recover, but how painful this awakening was. I tried to raise my hand to help myself up, but it did not obey me. I lifted the blanket to see my new feet and ... and tears poured, I did not make a sound just tears streamed down my cheeks, one by one. Iron pins protruded from the bones, they covered almost the surface of the legs. I touched myself and shook. New me looking like a terminator scared me.
My bed was in a corner in front of a huge window, from which only a couple of apartments and a night lamp could be seen, which later became the only present in my sleepless nights. After all the procedures, medications, disgusting but useful food, I was learning how to control mine ,but at the same time already not my body anymore. The most cool thing from all this shit were injections which helped me not to feel mental and physical pain. I was able to sleep only couple hours in a night everything was aching, I just looked at the lantern and people who were seen in the apartments opposite and think...think ...!
During 13 years every time I had to go through this hell and every time was worse and worse. Hundreds of sleepless nights, depressions, screams from pain which wake even the neighbors , broken things and broken bones. Each time I again and again was learning how to walk and restrain tears when I saw myself in a mirror. Every time I went to the hospital I was happy naively believing that is about to be over and I'll be free. But it did not happen. I was more or less okay a year and then again started , it is terribly painful to walk . I can’t move without pain .I checked in Turkey and in hospital they said 40 000 Euros and we will fix it . I was fighting 20 years for this and now I have last chance , last opportunity to be normal but I haven’t money. We work a lot but for my country it is really large amount .If you need any evidence I have all documents and photos . I will be immensely grateful for every dollar you’ll help me with .