₱1,500.00raised of ₱60,000.00 goal goal
Greetings Everyone, I'm Shiela Marie Sta. Maria Rutaquio from Binangonan, Rizal Philippines 1940, who have this rare and incurable autoimmune disease called NMOSD (NEUROMYELITIS OPTICA SPECTRUM DISEASE) a demyelinating disease commonly known as DEVIC'S DISEASE and mostly mistaken as MS or MULTIPLE SCLEROSIS, same symptoms but different treatments to manage it. I've been diagnosed since July 31, 2018. It is about my own Immune System fights against itself that causes my SPINAL CORD NERVE MYELIN SHEATH to be damage RESULTING TO PARALYSIS from my Thorasic 8 down to my Lower Limbs, I experienced severe Lower Back Pain, Bowel and Bladder Dysfunction that is why I sm on Foley Catheter FR18 to avoid infections that may lead or triggered to a Relapse. Also I got eye vision problem the nerves in my eyes is pale that causes it for me to not see clearly even I'm already wearing my glasses.
I was paralyzed since July 2018 and been ON and OFF in the hospital since then. Because doctors couldn't figure out what's really going on as early as they can from the day that my symptoms occur (December 2017). That is why I was left being PARALYZED and as of today as the Pandemic is still getting worst I am really struggling to find a way on how to support my medication and the therapy sessions I need to take.
And just for you to know year 2020 really hit our Family so hard many things happened and one of that is my Dad passed away because he was diagnosed w/ Pneumonia and unfortunately he didn't make it due to Heart and Kidney Failure.
After that just a few weeks later I was tested Positive of COVID-19 Asymptomatic, on/off fever and flu my immune system got really low I didn't noticed that I wasn't taking good care of my body coz' of what happened, loosing a Father who really stand by my side and never leaves me from the Day that I got sick, supporting me and helping me in any ways he can is really un-acceptable for me that is why I also suffer from Anxiety up to this day I am having a hard time to sleep, think and do what I have to do. "It feels like I was being cripled again and so down in the ground that I can't lift myself up again, all my fighting spirits to this illness is gone."
So, to all the people who might read this and can understand my situation and willing to help I created this fundraise to help me get through to support my Medication and have enough to cover the fees for the Therapy Sessions I need to take.
If you want to know more about what happened to me since the day I was Diagnosed you can check out my Facebook Account with the Album entitled My (NMOSD) - Devic's Disease Journey just search my full name to find my profile, and/or just visit this website who shared my story to be an awareness and motivation as well to other patients who is living here in the Philippines ( https://patientsrisingstories.org/story/devics-dis... )
PS: I input Hawaii as my location because there is no option to input Philippines.
- Armand Anthonie Balaguer
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