We're knocking into your doors again as we try to come up with funds for Aeva's wheelchair and High Chair. After being diagnosed with Lennox Gastaut Syndrome, she had suffer a couple of minor injuries due to fall and other accidents when she has a seizure episode. We were able to buy her a stroller a few months ago but she outgrew it and we need a more sturdy chair for her to keep her safe.
We hope to give her a little bit of independence as we notice she eats well on her own rather than being spoon fed and we couldn't find a high chair that's best for her. So we need to have a custom built one.
First of all, we'd like to thank everyone who donated through this page and who contacted us separately. At the moment, Aeva is on max dose on her current maintenance but her seizures are still there. Yesterday, we had about 15 seizures which shouldn't be the case given that she already has medicine.
We are able to come up with money for her Video EEg through the campaign. She is still in need of a CT scan or an MRI or both depending on her doctor's request. We have yet to come up with funds for our plane ticket but I'm sure God will provide.
We also have additional funds left for her occupational and speech therapies. Indeed, there are still good people out there and I hope I can return the favor one of these days.
For now, I will include you al in my prayers and that God will bless you a hundredfolds.
Aeva is currently recovering and is doing therapies 3 times a week. However, her seizures changed, she was having more than 20 seizures a day.m - they were called tonic seizures. Her Nuero said that before her focal seizures were just situated in one area of her brain (mostly caused by her shunt) but now it looks like her seizures are coming from both parts of her brain and she's not sure where unless a video EEG is done. Her current medications doesn't work on her seizures that's why we have to see an Epileptologist to get the right medicine for her.
We have to fly Aeva to Manila since there's no Epileptologists here in Bacolod or even in Iloilo or Cebu.
We're still running this campaign and we hope you can help us with Aeva's battle.
After a month: Aeva's doing well. She's walking! But we're still not talking and her coordination and memory is not in full swing. We were advised by her neurologist to occupational therapy and speech therapy. More updates here: https://wearethelizadas.wordpress.com/2019/05/16/u...