hi my name is Ron, i am an XDP(X-Linked Dystonia Parkinsonism)patient together with my 2 brothers, a rare disease wherein a mother is the carrier. I underwent an operation last July 2019.DBS or Deep Brain Stimulation.wherein sadly to say it progressed. i cant even have work. due to the following matters 1. i cant eat due to hard in swallowing 2. cant even talk-speech problems due to hyperlaxia(over salivation)and hard to walk because my muscle in my feet is twisting. and after 8 to 10years it will need replacement which costs million. my wife was the one supporting all our needs which is insufficient due to our monthly bills and my monthly medication. hoping and praying for your help. God bless and thank you for your donation. hoping it will cope up on my birthday on June 25. thank you so much. Prayers to all of us
