Sobi charity cycling for Haemophilia
Fundraising campaign by
Mikael Astrand
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€370.00raised of €360.00 goal goal
Campaign Story
Together with a team of Sobi colleagues, I will be cycling about 350 km from Paris to Brussels over three days from Friday 8 to Sunday 10 September in order to raise money for the European Haemophilia Consortium (EHC). From Paris we will be cruising through the French countryside passing through Compiègne and Valenciennes on our way to the Belgian border.
This page will be updated with pictures from the ride as we go along. Thank you so much for your support!
Sincerely
/Mikael
About the EHC
The European Haemophilia Consortium (EHC) is an international non-profit organisation that represents 45 national patients’ organisations of people with rare bleeding disorders from 27 Member States of the European Union (EU) and most Member States of the Council of Europe. The EHC represents approximately 90,000 people diagnosed with a rare bleeding condition such as haemophilia, von Willebrand Disease (VWD) and other rare bleeding disorders across Europe. However, it is estimated that many more live with an undiagnosed rare bleeding disorder.
About haemophilia
Haemophilia is a type of bleeding disorder in which the blood does not clot properly. When a person with haemophilia bleeds it takes longer than normal for the bleeding to stop. This is because people with haemophilia don’t produce enough of an important protein that helps the blood to clot, called a ‘clotting factor’. Haemophilia is a rare disease that is usually inherited and is more common in males than females.
About Sobi in haemophilia
Sobi Haemophilia is part of Sobi, a specialty pharmaceutical company based in Stockholm, Sweden. We want to contribute to a world where all people with haemophilia are diagnosed and receive effective treatment and life-long support to live a full life, free from limitations. Since 2006, Sobi has been working with Bioverativ to develop and advance haemophilia care. Sobi’s history of innovation in haemophilia is the foundation for our pioneering research today and for our long-term commitment in supporting the haemophilia community.
Organizer
- Mikael Astrand
- Campaign Owner
Donors
- Anonymous
- Donated on Nov 01, 2017
- Anonymous
- Donated on Sep 15, 2017
- Anonymous
- Donated on Sep 10, 2017
Well done!!
Early morning cycling by the Belgian canals on the way to Brussels
Update posted by Mikael Astrand at 03:52 pmArrival in Valencienne day 2: Completely exhausted after 160 km with multiple flat tires and a small injury
Update posted by Mikael Astrand at 03:50 pmDay 2: Struggling with flat tires and more rain
Update posted by Mikael Astrand at 03:29 pmDay 1: Lunch break in Plailly
Update posted by Mikael Astrand at 11:58 amThe challenge has officially begun. The first 40 km are behind us. After a tricky exit out of Paris the open road awaited and we managed to pick up the pace.
Donors & Comments
- Anonymous
- Donated on Nov 01, 2017
- Anonymous
- Donated on Sep 15, 2017
- Anonymous
- Donated on Sep 10, 2017
Well done!!
- Anna Sandegren
- Donated on Sep 10, 2017
- Disa Åstrand
- Donated on Sep 09, 2017
Imagine a cookie dough icecream on the finish line!
- Agneta o Manfred Åstrand
- Donated on Sep 09, 2017
Good luck!!
- Ulla-Britt Åstrand
- Donated on Sep 08, 2017
Good luck with the cycling and the campaign
- Robert Svensson
- Donated on Sep 08, 2017
- Anders Åstrand
- Donated on Sep 08, 2017
Kämpa! If you can feel your legs after this you didn't try hard enough!
- Erik Nordling
- Donated on Sep 08, 2017
Just done my 11 kilometers to work, you just have a bit longer to cover today. Go for the show!