Bring Baby Aya Home

Update posted by Jencel Marie Marcial-Anguluan On Feb 26, 2019

I wouldn't make it home without you. Thank you for your help and may you be blessed a thousand fold! <3


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Update posted by Jencel Marie Marcial-Anguluan On Jan 27, 2019

At last, Aya's OGT has been removed as ordered by her doctor. For a few days now, she is being fed via dropper, 35ml, and she's taking it well. She is also slowly learning how to breastfeed and is able to suckle for a few minutes on one boob then sleep. Soon, my exclusive pumping days will be over too!





Without the tapes and tube on her face, you can see her profile better. Sino'ng kamukha? She actually looks like Nate, who looks like Den. 🙄😋 And she is so active like Nate, at least 2 NICU moms (new classmates) confirmed this to me as well. One moment Aya is in the middle of the incubator, the next she is at the bottom. When Nate was a newborn, he was wiggling non-stop in his incubator until he bumped his head on it. All caught on video!


Her eye operation (injection) went well last week, and after just a few days the blood vessels are reacting to the medicine. The wriggly vessels stopped forming on the edges and the retina now has room to breathe and mature. I hope this good progress will continue so there will be no need for another injection or even laser treatment. We'll just have to wait and see. But for sure Aya will have to wear glasses (as early as next year, perhaps) to correct her vision.


I will update you again soon. Thank you for your continuous prayers and support! 💗


Love,

Mommy Jeng

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Update posted by Jencel Marie Marcial-Anguluan On Jan 18, 2019

After the 2nd ROP screening last Tuesday, the eye doctor confirmed that her ROP have progressed to Plus Disease and that her right eye is bleeding (internal). She needs to be treated asap to prevent vision loss.



Today, she will receive an eye injection to both eyes with the drug, Avastin, which helps block the growth of abnormal blood vessels in the eye. It's an anti-cancer drug as well. Praying that Aya will respond to this treatment; the doctor will then let her eyes mature some more and then laser eye treatment will be next.



I am terrified of the risks and of the actual procedure, but with your prayers and love, we know Aya will make it.



The good news, Aya has been without oxygen help for days and although there are desats, she is able to recover. We have tried breastfeeding little by little and she has good sucking reflex already, though needs more help due to her small mouth.



I will update you again soon. Thank you for your prayers and support! 💗



Love,

Mommy Jeng

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Update posted by Jencel Marie Marcial-Anguluan On Jan 12, 2019

The initial ROP screening was done and per the ophtalmologist, Aya has pre-Plus Disease in her eyes. It's good to know it's in the "pre" stage but if not monitored it may worsen and progress to blindness.


"Plus disease means that the blood vessels themselves are abnormally twisted and enlarged. A finding of plus disease or its warning signs (known as pre-plus disease) is a serious one, and has become very important in helping doctors decide when treatment is needed." Link on full article HERE.



He recommends another test to be done by Tuesday so he'll be able to assess what are the next steps needed to treat Aya. He said she has to gain weight, since even a little weight gain can help babies with ROP get better with minor intervention.


She also had her cranial ultrasound but I haven't asked for the results yet. For a few days she will receive eye drops, so her recent pictures looked like she just cried.



Please continue to pray for Aya. The thought of her undergoing possible laser treatment or even eye surgery is terrifying. We hope her check-up next week will be better.


Thank you and I will update you soon.


Love,

Mommy Jeng

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Update posted by Jencel Marie Marcial-Anguluan On Jan 10, 2019

Aya is already a month old (as of yesterday, Jan 9) and now weighs 1kg. Finally, we were allowed to do KMC (Kangaroo Mother Care)! A month late, but at last we finally had our Unang Yakap (Unang Yakap - EINC).


She woke up after being placed on my chest. Maybe she was surprised by the sudden change: my heartbeat, my clearer voice, my warm skin. It was also surprising for me, she was so tiny and featherlike, I was afraid I will break her. I didn't dare try to breastfeed (though her neonatologist said I could try), not yet, she still needed help with the oxygen sometimes and I directly place the oxygen funnel on her face when O2 levels become low. However, she removed her NGT again so maybe she's sort of telling me she's ready to direct latch (she hates that tube!).



I blindly took a photo of her while on my chest, check out the close up photo (parang pang UNICEF postcard!). I accidentally hit her head with my phone cover and she wailed in surprise. My heart dropped but I recovered quickly. 😅 First month, first time to be in a 'cellphone accident' and it may happen a few more times in the future. I consider this another funny story to tell her soon!



Good friend and fellow breastfeeding counselor MP Manacio visited us too and gave me a lactation massage (there is a breastfeeding room at the 3f of the hospital). Thank you for this gift and the chika!


There will be other tests to be done to Aya (brain scan and eye check) and will update you as soon as I have news. Thank you for your prayers and support! 💗


Love,

Mommy Jeng

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Update posted by Jencel Marie Marcial-Anguluan On Jan 03, 2019

Last night, Jan 2, we received a call from the NICU nurse about Aya's need for a blood transfusion. Her doctor asked for a CBC and the results came back with a low red blood cell count. She had been pale, and this may also be the reason why she was having apnea episodes (she stops breathing) and sometimes her oxygen level is low.



Since she's a premature baby, we had to move fast so there will be no grave complications. Less than 5 days old O+ blood was needed from 2 donors. Grateful for dear friends Benedict San Jose and Ysabelle Lorenzo Nina, who immediately came to the rescue and donated blood for Aya, and to Issa Osj and SweetSheryl Ingente-Valencerina (with kids in tow) for visiting and showing support. Words are not enough to express our gratitude not only for the blood, but for the time and effort. THANK YOU!



Two units had been transfused today, Jan 3, and one more to be given tomorrow morning. Aya's color is better and her skin has a healthier glow. Here she is, with her left foot up and showing off her hep-lock.


We hope that this will be the only heart-stopping surprise from Aya and that she recovers well soon. Thank you for the continuous prayers and support to our campaign to bring baby Aya home. <3 😊


Love,

Mommy Jeng

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Update posted by Jencel Marie Marcial-Anguluan On Dec 28, 2018

Aya is currently at 800g (birth weight 794g), and although it was only a 6g increase, I can see that her body mass has improved. Nagkakalaman na siya, hindi na gaanong buto't balat. Her skin tone is better too. Her oxygen cannula is back, the medical team tried to see if she can do without one, but she still needs a little help (lowest setting, ihip lang ng hangin); in time, Aya will be able to breathe entirely on her own.


For almost a week now, a human milk fortifier (HMF) is being added to her breastmilk. This is added vitamins, protein, electrolytes, etc. to help extremely low birth weight babies like Aya grow bigger and stronger, faster. As a breastfeeding counselor, I have reservations on the use of HMFs, but I trust my medical team. What I could do is research more about it and practice due diligence, so I asked for medical advise from pediatrician friends, an IBCLC, and a fellow breastfeeding counselor. Thank you to Ysabelle Lorenzo Nina, Dra. Gretel Dema-ala Contegino, and Dra. Tere Ribano for your insights. All of these medical interventions have a place, and what is most important is Aya's health, growth, and development.



This Christmas week, I was able to learn more about Aya's NICU classmates and their mommies. Everything has a purpose, and I believe that Aya and I were meant to be in the NICU to help these families too, one way or another. Although we are currently in need of financial help as well, we cannot turn a blind eye and leave these babies and families to fend for themselves. I am lucky to have friends and family like you whom I can count on; the others have no one to turn to. We are slowly building a stronger NICU "village" now, and how timely that it started during Christmas time.


Thank you for your never ending support! Please continue to pray and to share our campaign on social media, and donate if able. God bless you and your family! Merry Christmas! 😊💗🎄


Love,

Mommy Jeng

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Update posted by Jencel Marie Marcial-Anguluan On Dec 23, 2018

"She may be the youngest and the smallest here in the NICU, but she is the most energetic." - Nurse Bing


Aya is truly a fighter. On her first week alone, she was taken off her ventilator (extubated). She was only 794 grams when born and so tiny, but her small cries can be heard from outside the incubator, proof that her lungs are healthy and strong. Hear her roar in this video, taken when she was 4 days old. You can also see her tight grip on her oxygen cannula; it seems she wants to remove it already.



She has been drinking breastmilk really well, too, but still via NGT (nasogastric tube). They started giving her 1ml at first, then gradually increased the amount every 12 hours. She is now feeding 16ml every 3 hours and I expect another rapid increase of milk intake in the next few days. We were blessed to have breastmilk donors who helped Aya with her feedings in her first few days; I was only able to express milk on the 5th day. By the middle of the second week, I am able to express enough breastmilk to meet Aya's daily increasing needs. We still have a few bags of donors' milk, and I am happy to inform you that Aya has shared some of those donors' milk to another preemie family in need (twins, born premature at 36 weeks).


Aya will be two weeks old at exactly 10:15pm tonight, Dec 23, and her milestones already amaze us! Her IV has already been removed and antibiotics stopped. Per her neonatologist, she has a few episodes of apnea (temporary cessation of breathing), but it is within acceptable rates and common for premature babies. She is being given medicine via breastmilk feeds to help treat this condition.


Yesterday, I was able to watch the nurse change her diapers (she cried and I was able to hear her voice again, oh joy!) and then feed her breastmilk. Here she is, content after the nappy change. I look forward to the moment that I am able to bring her home and do the nappy change and breastfeed her myself.


I will provide updates again soon. Thank you for your continuous support and prayers. Merry Christmas and bless your kind hearts!


Love,

Mommy Jeng


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Update posted by Raissa Faye San Jose On Dec 17, 2018

Filipinos everywhere are cheering that #MsPhilippines #CatrionaGray is bringing home the #MsUniverse2018 crown. Can we come together and help a Filipino family #BringBabyAyaHome?

Only 45 days left in the campaign and so far we've raised 2% of Baby Aya's medical expenses! You can still help! Every peso counts. Sharing this post is caring, but giving? Now that is real love in action.

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Anonymous

Backed with ₱1500.00 On Feb 05, 2019

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Anonymous

Backed On Feb 03, 2019 Amount Hidden

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Get well soon Baby Aya! God bless! ❤️

Mary Anne Osorio

Backed On Jan 29, 2019 Amount Hidden

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Anonymous

Backed On Jan 16, 2019 Amount Hidden

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Anonymous

Backed On Jan 16, 2019 Amount Hidden

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“The LORD is near to all who call on him, to all who call on him in truth. He fulfills the desires of those who fear him; he hears their cry and saves them.” Psalm 145:18-19 Praying for the health of baby Aya!

Jason Enriquez

Backed On Jan 12, 2019 Amount Hidden

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Anonymous

Backed On Jan 10, 2019 Amount Hidden

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keep fighting baby!

Rechelle Areola

Backed with ₱1500.00 On Jan 09, 2019

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Extending to January 2019 my commitment to contribute to baby Aya’s cause a minor percentage of my earnings at gross, as they come. Truth to tell, my earnings increased this past month of December 2018 compared to Dec. 2017. By giving, i am receiving more.

Virgilio Ponciano Ocaya

Backed with ₱1500.00 On Jan 07, 2019

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Just keep swimming, Aya! We are praying for you. -Tita Anne, Tito Rosmer, Ate Izzy, and Ate Talia

Anne Bolus

Backed with ₱10000.00 On Jan 06, 2019

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Raissa Faye San Jose

Campaign Manager

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Early childhood education advocate and director at Bright Discovery Child Development Center

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Jencel Marie Marcial-anguluan

Campaign Partner

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Certified Breastfeeding Peer Counselor, Asst. Director at Bright Discovery Child Development Center, and Baby Aya's Mommy

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