Well here we are. It’s finally becoming closer to a reality. I have been battling my Cardiomyopathy for the last nine years. I have survived eight heart attacks, five strokes, meningitis & have had two valve replacements, going on my third ICD in the next 60 days & beginning the process of being officially added to the transplant waiting list. It’s been an incredible journey of medical miracles & devastating setbacks but I’m still here! I’m not one to give up a fight. I’m not one to dwell on the sadness of my disease. We are all given a short amount of time and nothing is ever guaranteed. I have seen amazing sights on multiple continents and met amazing humans from all across the globe. Im here to humbly ask for your help in making it another 47, I would be happy with another 5 years.
In 2009, my doctor said I had six weeks to live without surgery. It was exactly nine years on Thanksgiving that I had my first heart attack. I had an immediate valve replacement. Soon after the second & third heart attack, three strokes, brain hemorrhage & another valve replacement. Wow, that sounds like a lot but guess what I’m still here and if I am gonna get a transplant, I’m gonna enjoy what time I have left.
Don’t let your illness get your down. Down let it drown out those caring voices around you. I know going to the cardiologist is scary. I know there are times you think you just can’t make it one more day. On those days, I want you to think of my journey over the last 47 years. It has been a fight but a fight I am happy to have. I don’t know what tomorrow may bring but I know that my life has meaning. My journey has a purpose and my victory will be valiantly celebrated.
Hold your loved ones close and remind them how much they mean to you while we have the time. Don’t hold grudges or anger for too long. That stranger may be your next best friend. Live loving life. Don’t let what is going on in the world cloud your journey. You matter and those people around you matter. Whatever differences we have don’t matter in the operating room. Those petty arguments don’t help with recovery. Let the stress and worry around you slide off like water off a ducks back. This is about your journey and positivity will go a long way.
I’m sorry for invading your space but I just feel I need to let you know how much you mean to me and my journey. If I am lucky enough to get a transplant, I will continue giving forward and trying to encourage those who need that extra shoulder. I’m here for you if you need to talk. I have plenty of time waiting for a new heart.
May your New Year be filled with healthy updates & beautiful memories.