I have to share this one written by Zarah Angelicas mother (Sorry if the translation is not 100% perfect):

"We are a family of 6. Everyday, all focuses on Zarah Angelica's nursing needs and to raise money for a treatment that is the only one that works for our daughter.
The other children have been exposed to much after Zarah Angelica came to the world, thinking if the state had taken care of us in our situation. Thus, medical cannabis is Zarah Angelica's health treatment.
Our daughter has been granted permission but the Goverment will NOT cover anything of it.

This is what works for her health, development and quality of life. She has a sensitive liver due to Biliary Atresia which she operated for 3 weeks old.
She CAN NOT have the same epilepsy medicines as other children because of the liver as this can lead to liver transplantation. Medical Cannabis is not considered as a drug. But for our daughter it's just that. She has intractable epilepsy, ie epilepsy that is treatment-resistant. Many never get better and have a constant attack.

When we give our daughter CBD, there are changes after a short period of time, she is more present, fewer / less frequent and occasionally so good that she plows / sings, plays and is out of touch. Thanks to the CBD, she started eating herself, she managed to sit a little without support and do things physically in a completely different way.

After a long period of illness now, apart from 6 months, she has not managed to get Bedrolite as normal, this is a granulate from Bedrocan containing less than 1% THC and 9% CBD.
This has meant that she has had to use more of Charlottes Web's oil during the illnesses, which we get in her no matter how bad she is. They have a complex flavor of chocolate and mint that is mild to taste. The combination of Bedrolite and the oil from Charlottes Web has been a fantastic balnding for Zarah Angelica's case. And the certainty is that we get her the oil when she does not take the granules in the food has been a relief. In the United States, they also have a nasal spray that is used acute, instead of Stesolid / Buccolam.
This is also a high desire to save the liver.

July 7th, we went out in the local newspaper "Haugesund Avis"after they contacted us, we openly shared our frustration that we can not cover her treatment that costs us $2500, - a month, and apart from that we have thousands of expenses for vitamins, minerals and donations we also can not cover (D-white. Magnesium. SOUL. Nigella Sativa. Sannasol. Tran. B12 .B6. Semper drops).
Many of these grants actually recommend both doctors and hospitals that they should give because they need more of them.
But yet it is not covered by the Goverment. If we say yes the "money bag" will Quickly go empty, says parliamentary commissioner and health politician Sveinung Stensland to "Haugesundsavis" Its TALKING ABOUT human life here.
Children who can die without proper treatment mean the money bag more than human life - should have been a lot of priority in terms of spending money !! There was no solution in our case, what about other children who have to grow up to witness all these frustrations and stresses daily.
Really, there is not much health prevention work in this. And it's unbelievably much work to deal with in many ways.
Something many does not see, before they are up in the situation yourself.
It's no comfort that things will get better over time, we have little time. We notice we are tired but we have to continue to work, if not, then we can not give her the treatment she has, and then Zarah Angelica can DIE from us, not to live for as long as we hoping for.
As I'm writing this my tears floods, and the sight of a children's chest is there - which I feared since she was in my stomach.
We must just stand on in Love, openness, honesty and gratitude for those who help us further!

The point of the newspaper article was to raise the costs, shortly after, we get a disturbing message from the Norwegian Medicines Agency that we will no longer be able to use Charlottes Web, which has been amazing for Zarah Angelica.
They want to use another from a pharmacy in Denmark. This is not even the same oil, neither the same content nor the manufacturer. That's a completely different oil, and it costs twice as much and it's an insulated CBD - something that will not have the same effect on Zarah Angelica. She has the best effect of synergy of everything in the plant together, and needs more than CBD alone to trigger all endocannabinoid receptors in the body and brain. We have not had any profit to take this in, but thanks to supportive people in our local community, we are now ready and strengthened to address this.
Our local community has helped us with crown rolling, buying cakes, shorts, fleas, donations and flea donations.

And we have received gifts to save on other expenses, thus more to Zarah Angelica and the family at no cost. The people stand on to help us, but the state is missing and actually worsens our already critical situation by doubling our costs and denying her a treatment that works. Zarah Angelica's monthly expenses will be at $3800, - a month if we would go over to what the state drug agency wants. On top of it, it probably will not work as well as what she's getting now!
But anyway, at that price, we are really pressured to not manage much more.
We have been struggling since she was born. Thanks to people in the local community, Zarah Angelica has collected some via some fundrising, but we can not take a break - for the money does not last. And the road ahead is hard to see." - Mother

Hope this was a little informative for you Good people out there, to see how this frustrating situation is for them at the moment.
I cant understand this, we are one of the richest country's in the world, but we cant help our own children. Its a shame, its frustrating...

Thanks to all who has donated and sharing this gogetfunding Fundriser I run here. Please share this, and if you have a few extra $ to give away, we are thanksfull.

Till next time,
Sig

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