Feb 11, 2017 at 10:53 pm

From Occipital Meningocele to Occipital Meningo-encephalocele

Update posted by Christine Marie Micua

On a fetal MRI done in January 10, 2017 the fluid-filled structure protruding out of the occipital region measures about 1.4 by 2.3 by 2 cm. Also according to the same fetal MRI, "A small portion of the cerebellum/vermis is also insinuating into the bone defect, compatible with an occipital meningo-encephalocele". A biophysical profile scoring ultrasound report done two days after (Jan. 12) says "thin walled sac like structure protruding from the occipital region now measures 3.3 by 2 by 2.9 cm. A follow up biophysical profile scoring ultrasound report done on February 7 finds " A bone defect meauring 1.1 cm at the occipital area with brain structures measuring 1.7 by 1.1 cm protruding out of the bone defect and into a thin walled (0.12 cm) cystic structure measuring 4.1 by 4.4 by 3.8 cm."

As of today February 12, I am now 34 weeks and 5 days. I was told two days ago by my obstetrician-gynecologist that CS will be on February 21 at 36 weeks age of gestation so that the cyst on my baby's head doesn't grow anymore bigger.

I continue to ask for your help as the operation that will have to be done to remove the cyst on my baby's head, to be able to put the cerebellum back in place, and to fix the gap on his skull as informed by the team of doctors (obstetrician-gynecologist, perinatologist, neonatologist, and pedia neurosurgeon) that will take care of our baby is a tremendous amount. Me and my partner, baby's father, are both pulling our finances together, asking the help of our families, and we are also asking your kindness if you could help us.

Your kindness will mean a whole world of difference to me and my partner, our families, and our little boy, William


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