Nov 28, 2013 at 01:59 pm

Surgery Update

Update posted by Jgiampaolo

Hi everyone,

Sorry it's been awhile since the last update, we have just basically been waiting at home for the surgery, which finally happened yesterday.  Alexandria went in at 8am yesterday, 11/27, and surgery last 13 hours.  By far the longest wait in our lives.  She is currently in the CVICU (Cardiovascular Intensive Care Unit) and is pretty stable for the most part.  She is hooked up to many IVs as well.  She has a Central Line, which goes into her jugular and straight to her heart, an arterial line, as well as many peripheral IVs.  She has 3 chest tubes for drainage, a Foley catheter, and also has what are called pacing wires.  The pacing wires are directly inserted into the heart and can change the hearts rhythm if necessary.  Alexandria is currently still completely sedated, and fully dependent on the ventilator to breathe.  She is currently receiving 11 different medications to help support her heart and lungs, as well as pain medications.  

Twice this morning they have slowly tried to ween her off sedation without any luck.  She becomes agitated and her blood pressures and heart rate increase to a dangerous level.  We are hoping to be weened off and off the ventilator by Sunday, but its hard to say.  She is at a great risk for pulmonary hypertension as well as other things, so drs are taking their time, which is great.  When we know more we will update.  For now, please keep praying.  Thank you so much for your support.

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