Jul 04, 2013 at 09:29 pm

July 4th

Update posted by Jgiampaolo
Happy 4th of July everyone! Sorry it took so long to update, but we have had an extremely busy week. We welcomed our beautiful girl into our world on Saturday, July 29th at 2:49AM. She weighed in at 6lbs 4oz, and was 18.75 inches long. I ended up being induced early at 37 weeks due to an additional complication called Cholestasis (a pregnancy induced liver disorder). She came out screaming and full of life, but was immediately rushed to the NICU (neonatal intensive care unit). She was hooked up to every machine under the sun, but was doing surprisingly well, so 6 hours after birth, she was taken off the oxygen. It is now her 5th day of life, and everyone is impressed with how well she is doing, considering her diagnosis. She has undergone an angiogram, and cardiac catheterization, which all have confirmed the diagnosis of Tetrology of Fallot with Pulmonary Atresia and MAPCAS. Since she's doing so well right now, they have decided to postpone surgery until September, giving her time to grow to ensure a speedier recovery. She looks like a healthy baby, but you can tell she has cardiac issues because sometimes when she's upset, she has what is called a tet spell and turns blue. It's quite scary. Right now, she is undergoing phototherapy for jaundice (common in all newborns), and started a medication that she will continue called Lasix. It's a diuretic that will help make sure she has no fluid build up. She is truly a blessing, and we are so grateful for her. Even considering the long road we still have ahead of us, I wouldn't change a single thing. Thank you all so much for your thoughts and prayers, they are greatly appreciated.
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