May 10, 2013 at 12:16 pm

Appointments yesterday at Stanford

Update posted by Jgiampaolo
Hi everyone, Yesterday was quite the eventful day for Liko and I. We went down to Luciele Packard Children's Hospital at Stanford University for four different appointments! First, we met with Dr. Frank Hanley in the morning. I have heard other doctors describe him literally as "God" and that this man walks on water in the surgical world. That is definitely true, although he was extremely warm and down to earth, you would never know what extrodinary things he does. Dr. Hanley is a world-renowned pediatric cardiothoracic surgeon who pioneered the surgery we happen to need for our daughter. Meeting with him was such a relief. I know she will be in the most capable hands. He has performed this surgery over 800 times--with children from all over the world coming to him. Although the meeting went great, we still won't know the exact surgical plan until she is born and he can take a better look. Second, we met with Dr. Davis, the Director of Neonatal and Developmental Medicine. She basically went over everything we could expect after Alexandria is born, during her stay in the Neonatal Intensive Care Unit (NICU). We also took a tour of the Labor & Delivery Unit, and the NICU as well. It was amazing how many babies are actually there. On an average day, the NICU at Stanford hosts over 40 babies. Meeting with Dr. Davis was extremely informative, and really made this more of a reality for us. Next, we had a general anatomy ultrasound. This was just to make sure she is growing properly and along with schedule. They also took a look to see if they could notice any physical signs of any other abnormality. Thankfully, we found out she is growing just as she should be, weighing 3.2lbs already! Also, there was no physical signs of any additional abnormality, although we really won't know that for sure until she is born. Lastly, we met with my new high-risk OB, Dr. Myelin. She was wonderful, we talked for awhile as she got to know my family history, and decided how we would proceed. We decided I would continue to see both Dr. Jimenez here in Santa Rosa, and she in Stanford every other week. Which means a ton of trips back and forth until I have to move down to Palo Alto, around 4 weeks before my due date. She also referred me to an adult cardiologist at Stanford, just as precaution. We left feeling slightly overwhelmed, but extremely confident in the care that our daughter, as well as myself, will receive. Thank you so much for following our story, and especially for your thoughts and prayers. It means more than we can begin to describe. Love, Mallorie & Liko
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