WE MAKE A LIVING BY WHAT WE GET, BUT WE MAKE A LIFE BY WHAT WE GIVE. Baby Rish Xian needs our help!

Update posted by Rogelyn Mae Catalan On May 30, 2018

What's on my mind?

As much as i can, I'm trying my best to be open minded as I can be. It pains me to see the scenario now. When the goal of treating the illness shifts to providing comfort. Doctors are suggesting Homecare for Xian. Hospice will provide everything he needs; mechanical ventilator, equipments, nurse and a doctor. So the set up at home is just the same inside the pedia icu. And from what I understand, Homecare is suggested to those patient whose life expectancy is 6 months or less. In short this is "END-OF-LIFE" program.

If he stay here in the hospital, doctor may do everything possible to prolong his life, in hopes that cure can be figured out.

And if we opts Hospice care, it means we essentially concede that the disease is going to take his life. In my own point of view, hospice care eliminates the possibility that medications or treatments can bring Xian back. Choosing Hospice care might also mean that "WE" are avoiding unwanted hospitalization, medical treatments and procedures. Treating someone who's seriously ill at home for me is like a major operation without anesthesia. It's also feel like we must come to terms that he is going to "die" in 6months or less.

Given the fact that the goal of Hospice is to manage our family's pain, anxiety, agitation, name it, etc. I THANK THEM FOR THAT. But in the end our decision still matters. WE ARE NOT GIVING UP XIAN. I appeal to everyone to give him more time to recover, we know its nearly 3months stay in the PICU. Im just a mother of a sick child begging to give him more time to heal. PLEASE. i dont want my son to end up at home and discharged into my completely untrained hands.

Also,it pains me to say that we have no resources left to give my baby a fighting chance. Being powerless to help my 7month old baby fighting for his life is a very humbling experience for me. I appeal to your kindness and ask for support and prayers in this extreme circumstance. I will be grateful to all for any kind of financial support that can be gathered for my sons recovery.

PLEASE SHARE !

Thank you!

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Darlyn Daguplo

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get well soonest baby. I will pray for your fastest recovery.

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God Bless

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Rogelyn Mae Catalan

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