My 3 old months baby was diagnosed with AMC (Arthrogryposis Multiplex Congenita) condition. A congenital joint contracture in two or more areas of the body. Gabrielle has both lower and upper extremities.Both arms and legs were in a stiff position.She has a webbed and adducted fingers and clubfoot too. Doctor said that it gonna be a long process medication,treatments and procedures before she get well. We've been through serial taping and splinting since she was 2 weeks old then.Serial casting will be the next procedures when the knee flexion bends to 110 degree. There is no absolute cure for this condition, however the quality of life can be improved through variety of orthopedic surgeries, medications,therapies,procedure that she will take in the future. And since this is a long term treatment,doctor said that I need some solid fund to finance her medication.
Really need help to raise fund so that our baby Gabrielle will be able to walk ,bend her legs,move her feet,throw her arms,touch and hold things and embrace happiness.