US$225.00raised of $1,000.00 goal goal
Gwyn Aeva or as we fondly call her "A" is a 5 year old from Bacolod City born with Hydrocephalus and Encephalocele. She had two brain surgeries and has been and out of the hospital. She was diagnosed with Epilepsy at 6 months.
She's in Kindergarten and is very smart, loving and friendly. She likes to play, read books, draw and play pretend with her toy guitar and piano. She likes to sing and attempts to dance as well even if she's terrible at it.
However, this Monday, April 15th - A had a seizure episode and her doctors found out she has pneumonia. She was unconscious for two days and said a few words on Wednesday. However, her antibiotics weren't doing anything so we had to switch to a more aggressive one. Thursday came and she woke up but was lethargic and not speaking or would stare blankly.
Her Nuero said that it was caused by her seizures that her development declined as it affected her frontal lobe. I don't really have all the details yet but currently she only responds to pain, movement, light and sound. Our bubbly girl is somewhere in there and we know with time and therapy we'll be able to get her back to her old self. A little broken but it's her nonetheless.
We are currently waiting for her Pneumonia to completely go away and are still in the hospital. Our bill is piling up and there's still a lot of things ahead of us.
We humbly ask for your help as we battle this with A. We know she's there and fighting - we hope you fight with us.
Thank you and may God bless you all.
- Emi Paulette Lizada
- Campaign Owner
Aeva's Wheelchair and HighChairUpdate posted by Emi Paulette Lizada at 08:16 pm
We're knocking into your doors again as we try to come up with funds for Aeva's wheelchair and High Chair. After being diagnosed with Lennox Gastaut Syndrome, she had suffer a couple of minor injuries due to fall and other accidents when she has a seizure episode. We were able. . . . .
GratefulUpdate posted by Emi Paulette Lizada at 03:24 am
First of all, we'd like to thank everyone who donated through this page and who contacted us separately. At the moment, Aeva is on max dose on her current maintenance but her seizures are still there. Yesterday, we had about 15 seizures which shouldn't be the case given that she. . . . .
EpilepsyUpdate posted by Emi Paulette Lizada at 04:34 am
Aeva is currently recovering and is doing therapies 3 times a week. However, her seizures changed, she was having more than 20 seizures a day.m - they were called tonic seizures. Her Nuero said that before her focal seizures were just situated in one area of her brain (mostly caused. . . . .
UpdateUpdate posted by Emi Paulette Lizada at 07:06 pm
After a month: Aeva's doing well. She's walking! But we're still not talking and her coordination and memory is not in full swing. We were advised by her neurologist to occupational therapy and speech therapy. More updates here: https://wearethelizadas.wordpress.com/2019/05/16/u...