Raising money for Haemophilia/Bleeding disorders
Fundraising campaign by
Max Tullberg
-
kr2,200.00raised of kr3,400.00 goal goal
No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities
Campaign Story
Together with a team of Sobi colleagues, I will be cycling about 350 km from Paris to Brussels over three days from Friday 8 to Sunday 10 September in order to raise money for the European Haemophilia Consortium (EHC).
In order to donate please use the options provided on this site (credit card or PayPal) OR use SWISH (070-9154902) and write EHC in the comment field. All funds received will be provided to EHC in order to for them to continue to improve the lives for people with bleeding disorders.
The European Haemophilia Consortium (EHC) is an international non-profit organisation that represents 45 national patients’ organisations of people with rare bleeding disorders. One of EHC's objectives is to increase access to replacement therapies in European countries that provide little or no such treatment to their haemophilia patients.
Other EHC objectives are:
- Improving quality of life of people living with rare bleeding disorders
- Improving diagnostic and treatment facilities,
- Ensuring adequate supply of – and access to – safe factor concentrates,
- Promoting patients’ rights and raising ethical issues,
- Following and influencing developments in European health policy,
- Understanding the status of haemophilia care in member countries through regular surveys,
- Stimulating research in all fields related to haemophilia and related rare bleeding disorders.
Organizer
- Max Tullberg
- Campaign Owner
Donors
- Linda Herrlund
- Donated on Sep 05, 2017
- Lena Almgren
- Donated on Sep 02, 2017
Bra initiativ!
No updates for this campaign just yet
Donors & Comments
- Charlotte af Klercker
- Donated on Sep 07, 2017
Go Max!!
- Linda Herrlund
- Donated on Sep 05, 2017
- Lena Almgren
- Donated on Sep 02, 2017
Bra initiativ!
- Pelle Almgren
- Donated on Sep 02, 2017
Heja Max! Du är bäst!
- Louise Sjöholm
- Donated on Sep 02, 2017
- Niklas Claesson
- Donated on Sep 01, 2017
Good luck!!
- Carin Dahlquist
- Donated on Aug 31, 2017
Cykla nu på ordentligt Max! Det kommer att blir en fantastisk resa!!
- Anna Witasp
- Donated on Aug 28, 2017
- Hans Tullberg
- Donated on Aug 26, 2017
- Malin Moisander
- Donated on Aug 26, 2017
Go Max!!