Research funding for Multiple System Atrophy
Fundraising campaign by
Mark Voerman
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AU$786.00raised of AU$2,000.00 goal goal
No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities
Campaign Story
This Campaign is to raise funds for MSA Research in Australia and New Zealand. Since 2007 progress has been made with research into this largely unknown medical condition that affects 4 in every 100,000 people, but still there is no proper diagnosis, no treatment and no cure. But the research has started to give hope and it will only continue if there is sufficient funding.
Any Funds less fees and the wholesale price of the Key Rings will be donated to the MSA Genome Research Project being run by the University of NSW (Click on Link for a Article on the Research)
At the present time Donations are not Tax Deductable for this campaign.
By Donating you will receive one keyring per $12.00 donated.
Multiple System Atrophy (Source: msatrust.org.uk)
Multiple system atrophy (MSA) is a progressive neurological disorder that affects adult men and women. It is caused by degeneration or atrophy of nerve cells in several (or multiple) areas of the brain which can result in problems with movement, balance and automatic functions of the body such as bladder and blood pressure control.
Until recently MSA was thought to be a very rare disorder. As we learn more about the condition, it has become somewhat easier to recognise and diagnose. Recent research suggests it affects about 5 people per 100,000 so that at any one time there are almost 2,500 people living with MSA in the UK. Parkinson’s disease is about 45 times more common, affecting about 200 per 100,000 in the UK.
MSA usually starts between the ages of 50-60 years, but it can affect people younger and older. MSA does not appear to be hereditary although current research is examining whether or not there is a genetic predisposition to develop the disease. The importance of environmental factors is not clear and there is still much to understand about the condition. We do know it is not infectious or contagious and has no connection with the much more common neurological disease, multiple sclerosis (MS).
Rewards
Key Ring as shown
Organizer
- Mark Voerman
Donors
- Mandy Batey
- Donated on Sep 14, 2015
- Marion Campbell
- Donated on Sep 08, 2015
So grateful that you are raising money for this invalubale research.
Our Journey with MSA
Update posted by Mark Voerman at 01:17 amImagine if your Mum, Dad or Partner, slowly develop a stagger in their walk, find it difficult to get on or off a escalator, need a handrail to get up and down one or two steps. Then they have difficulty getting in and out of a chair or feel faint. . . . .
Going Live..
Update posted by Mark Voerman at 05:29 amSeptember 4th marks the 3rd Anniversary of my Wife's passing from Multiple System Atrophy and this campaign is to satisfy her number 1 item on the bucket list she left me, that is to ensure other sufferers of MSA do not feel the same sense of hopelessness she felt. Only. . . . .
Donors & Comments
- Mandy Batey
- Donated on Sep 14, 2015
J & J 0' S
- Mandy Batey
- Donated on Sep 14, 2015
- Marion Campbell
- Donated on Sep 08, 2015
So grateful that you are raising money for this invalubale research.
- C. Rustichelli
- Donated on Sep 08, 2015
an important step towards awareness - well done
- Rose Thomas
- Donated on Sep 08, 2015
Thanks Mark,keep up the good work, we need a cure for this debilitating illness
- Julie Beus
- Donated on Sep 06, 2015
- Ms Suzanne Farrell
- Donated on Sep 05, 2015
- Cathy
- Donated on Sep 04, 2015
- Jade Farrell
- Donated on Sep 04, 2015
- Mandy Batey
- Donated on Sep 04, 2015
Great job Mark.
J & J 0' S