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Baby is diagnosed with Alobar Holoprosencephaly the most severe type of holoprosencephaly means wala xa frontal lobe sa iyaha brain ,water ang nag occupy sa front part nya, Naa xa MICROCEPHALY (small heads),SEIZURE DISORDER(occurs every 2 minutes depend sa condition nya,CORTICAL BLINDNESS,CLEFT LIP AND PALATE,NO VISSIBLE NOSE.

-feeding problem maong nka OGT feeding na xa..

-seizure meds-Trileptal

Recent finding ni doc nya is nag request xa repeat

*MRI kay naa cyay indication sa hydrocephalus,and hopefully wala lang kay kundi needed xa surgery ,shunt surgery para ma eliminate ang excess water sa iyaha ulo..

Request sa geneticist is *karyotype- chromosomal count and para madetermine kung unsa sya na syndrome and possibility of living

-series of test to take hearing test,eye test, therapies for movements,

-series of check up to make immunologist,

Developmental pedia,Endrocrinologist, neuro follow up every month and geneticist once a year

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  • Janine Cortes
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