Bee was born with a rare disease called Lissencephaly. Our first neurologist told me that she would ". . . not live to be two and would always be a vegetable." She wasn't very specific about which vegetable. As Bee will turn 19 in January, she was very wrong. And I'm so glad - I'm not a big fan of vegetables. Cauliflower in particular, ick.
Lissencephaly can range from very mild to very severe and unfortuntaly for Bee, she is on the severe side. Bee cannot walk, talk, or even hold her head up on her own. She has a feeding tube and wears diapers. However, Bee is so much more than her disease! She loves to paint, listend to audiobooks and be around other people, she is very gregarious. Bee lives with me, her mother, and her younger brother. Although she is often very ill, she has the happiest disposition of anyone I have ever known. Bee deals with illnesses, painful medical tests and all of the limitations that come with her disease with a grace that is astounding.
However, because we do not have a wheelchair van, we are mostly homebound. Her doctor is about a mile away from us and an easy walk pushing her wheelchair. If we want to go farther than that, however, we are unable to. The funding for a wheelchair van might as well be the moon but we have found another solution! The Wike Cargo Tricycle! With a few modifications we could use this to transport her wheelchair. Instead of being stuck at home we could go do things as a family like attend the Christmas parade, or the various festivals the town holds throughout the year - anything to get out of the house!
Because, like many people these days, we are living month to month, I have turned to this website in the hopes of raising the money needed to purchase the Wike Cargo Tricycle and pay for the modifications needed. This would be such a blessing for the three of us and any help would be greatly appreciated!