Lulama Chabane is 9 years old. She was diagnosed with Aplastic in February 2019. Before her diagnoses she had a history of nose bleeds. How we got to find out of her condition was through what we can call divine intervention. In December 2018 when gathered as a family we headed to the grave yard as is customary around that time to pay respects to out deceased loved one and offer prayers. Whilst we were praying Lulama happened to wander around the graveyard and came upon a tombstone of her great-great grandmother which had been re-done, she moved a slab on top of the stone that fell on her foot. We had her scream and rushed to her and saw her foot was already swollen. We rushed her to hospital. When she was in hospital she started bleeding and the Doctor who was treating her decided to do further investigation having learned that the nose bleeds were recurring. Her blood levels were found to be dangerously low and the Doctor ordered a further biopsy be taken. She had a cast done for her broken foot and got crutches. Her biopsy was referred to specialists and in February 2019 the results came back that she had Aplastic Anemia. We were told the dreadful news that the condition is rare and does not have a cure. As a family we started doing some research to familiarise ourselves with the condition and to be in the best position to care for Lulama. It was heart-breaking to learn some of the facts about the condition. Lulama now heavily relies on blood transfusion which she normally gets twice a month. She has to be regularly hospitalised and each time the blood levels are low and the platelet count is low and she is prone to all sorts of infections as her bone marrow is deficient. Due to constant hospitalisation Lulama misses a lot of school which is detrimental to her progress even though she is a gifted student. This presents a constant worry that she might have to repeat her grades. Lulama herself has been strong and courageous through this even though it is a serious challenge. We are hoping to get a bone marrow transplant for her which is a possible cure to give her a chance in life. She is a surrounded by lots of love, she is a beautiful, spirited, happy, cheerful, brave girl full of fight. We want her with us.