Walking for LExi
Fundraising campaign by
anthony colcombe
-
£3,700.00raised of £2,000.00 goal goal
Campaign Story
Lexi was born on 18/7/12, and by the age of 4 months had started having seizures. At first these were thought to be Febrile, or fever, seizures, but by the turn of the new year in 2013 it was clear that Lexi had a severe epilepsy condition. On March 6th 2013, Lexi was admitted to the University Hospital of Wales, Childrens Hospital, straight into intensive care, having had seizures every 5 minutes over a 3 hour period. The next 11 weeks of Lexi's life were spent at this hospital during which, Lexi was having over 100 plus seizures on a daily basis. Thanks to the fantastic help of the staff and consultants at this Childrens Hospital, Lexi's seizures were gradually brought under relative control. Now every day Lex’i’s life is lived with the threat of seizures, knowing that each time she has a seizure it could be her last asnwe will lose her
Lexi has two epilepsy conditions; Migrating Partial epilepsy of Infancy, and Dravets Syndrome....both can be fatal, one is extremely life limiting, the other can be .
As a result of the seizures Lexi endured as a young baby she is developmentally locked at a neurological age of 3 months, whilst she physically contnues to grow. Life is extremely tough for Lexi, but every single second of all the hardship is worth it to receive on of her beautiful smiles.
To complement her Anti Epilepsy medications, we are also using Haleighs hope cannabis oil. since it's first use we have seen significant improvements in Lexi's health. She smiles a lot more, she is far more alert, reacts to both noise, objects and people passing.
This oil is funded privately. Each bottle can cost up to £140.00 , and can last as little as 3 weeks ( dosage dependent)
Along with a large group of my friends, affectionately called the "Old Codgers", we are walking the challenging terrain of the Welsh 3 Peaks during the weekend September 14/15th this year. As you can tell from it's title, the "old Codgers" are not of a younger generation, but are a wonderful group of lifelong friends that are coming together to help out my beautiful daughter. We have all known each other for well over 30 years, and have friendships that spanned from our collective times together at St David's university , Lampeter.
I am privileged to call these my friends, and the fact they are all willing to endure such a challenging fundraising event speaks volumes of this friendship, and their very good intention to raise funds for my beautiful daughter
Please feel free to donate any amount you can to make our pain a bit easier to endure on the day.
You can also follow Lexi's journey through life at her Facebook page below. Again, please feel free to do this
I thank you on advance for any donation you can make
https://www.facebook.com/LexisLegions/
Organizer
- anthony colcombe
- Campaign Owner
Donors
- penjhor sherpa
- Donated on Oct 28, 2019
- Anonymous
- Donated on Oct 15, 2019
No updates for this campaign just yet
Donors & Comments
- Ruby Ann Gamilla
- Posted On Oct 29, 2019
hi to all...i am writing to knock from your good heart to please support my campaign too as i badly needed the operation for my heart. I am suffering from rheumatic heart disease and heart enlargement since 2009 and been struggling and fighting for my life. Lately i am experiencing difficulties in breathing and my body became weak each and everyday...thats why my doctor adviced me to undergo open heart surgery as soon as possible... my family can not afford the costs of the operation thats whyi am seeking for some person all over the world who have good heart and willing to send help for me. Every single penny would mean life extension for me. Hope to hear from you who have helped LEXIE... thank you and GOD BLESS YOU! yours truely - RUBY ANN GAMILLA / HEARTKO2019
- penjhor sherpa
- Donated on Oct 28, 2019
- Anonymous
- Donated on Oct 15, 2019
- Joanne Davies
- Donated on Oct 11, 2019
- Fish & Mrs Fish
- Donated on Oct 08, 2019
Proceeds from auction item - Elfyn Evans print
- Anonymous
- Donated on Oct 08, 2019
Best wishes for Lexi and her family
- Dave Dulson
- Donated on Oct 07, 2019
for Ieuan's staff!
- Anonymous
- Donated on Oct 05, 2019
- Anonymous
- Donated on Oct 04, 2019
- Elin Jones
- Donated on Oct 03, 2019
Auction -Dolgellau Weekend!
hi to all...i am writing to knock from your good heart to please support my campaign too as i badly needed the operation for my heart. I am suffering from rheumatic heart disease and heart enlargement since 2009 and been struggling and fighting for my life. Lately i am experiencing difficulties in breathing and my body became weak each and everyday...thats why my doctor adviced me to undergo open heart surgery as soon as possible... my family can not afford the costs of the operation thats whyi am seeking for some person all over the world who have good heart and willing to send help for me. Every single penny would mean life extension for me. Hope to hear from you who have helped LEXIE... thank you and GOD BLESS YOU! yours truely - RUBY ANN GAMILLA / HEARTKO2019