Lexi was born on 18/7/12, and by the age of 4 months had started having seizures. At first these were thought to be Febrile, or fever, seizures, but by the turn of the new year in 2013 it was clear that Lexi had a severe epilepsy condition. On March 6th 2013, Lexi was admitted to the University Hospital of Wales, Childrens Hospital, straight into intensive care, having had seizures every 5 minutes over a 3 hour period. The next 11 weeks of Lexi's life were spent at this hospital during which, Lexi was having over 100 plus seizures on a daily basis. Thanks to the fantastic help of the staff and consultants at this Childrens Hospital, Lexi's seizures were gradually brought under relative control. Now every day Lex’i’s life is lived with the threat of seizures, knowing that each time she has a seizure it could be her last asnwe will lose her
Lexi has two epilepsy conditions; Migrating Partial epilepsy of Infancy, and Dravets Syndrome....both can be fatal, one is extremely life limiting, the other can be .
As a result of the seizures Lexi endured as a young baby she is developmentally locked at a neurological age of 3 months, whilst she physically contnues to grow. Life is extremely tough for Lexi, but every single second of all the hardship is worth it to receive on of her beautiful smiles.
To complement her Anti Epilepsy medications, we are also using Haleighs hope cannabis oil. since it's first use we have seen significant improvements in Lexi's health. She smiles a lot more, she is far more alert, reacts to both noise, objects and people passing.
This oil is funded privately. Each bottle can cost up to £140.00 , and can last as little as 3 weeks ( dosage dependent)
Along with a large group of my friends, affectionately called the "Old Codgers", we are walking the challenging terrain of the Welsh 3 Peaks during the weekend September 14/15th this year. As you can tell from it's title, the "old Codgers" are not of a younger generation, but are a wonderful group of lifelong friends that are coming together to help out my beautiful daughter. We have all known each other for well over 30 years, and have friendships that spanned from our collective times together at St David's university , Lampeter.
I am privileged to call these my friends, and the fact they are all willing to endure such a challenging fundraising event speaks volumes of this friendship, and their very good intention to raise funds for my beautiful daughter
Please feel free to donate any amount you can to make our pain a bit easier to endure on the day.
You can also follow Lexi's journey through life at her Facebook page below. Again, please feel free to do this
I thank you on advance for any donation you can make