Hello, as most of you know my names Hollee and I'm 27 years old. Two and a half years ago is when my nightmare began. I started to get epigastric pain; thinking it was a possible gastroenterological problem, i visited a gastroenterologist.After numerous scans, and tests I was diagnosed with H pylori bacteria and given medicine. The pain did not go; and my medication was changed a further 5 times- with no relief. At this point; the gastroenterologist became clueless and i was passed to a general surgeon in the same hospital who dismissed further scans and again I had to find other doctors.
At this point, i was on Tramadol for the pain. It was now 7 months since the pain first began and I began to get pain in the left hand side on the ribs on the back side . The pain grew worse and my weight dropped drastically. The general surgeon was clueless. I was referred to orthopaedic, neurosurgeon, more general surgeons, gynaecologists - had 7 MRI'S, 3 CT scans, all of various parts of the body. The doctors could find nothing.
Until November 2018.By this point the pain had grew so much that everyday was planned around my pain. I had a CT of the abdomen in November 2018 which showed a syndrome called SMA Syndrome. The general surgeon dismissed the findings as only radiological and did not know how to help. After this dismissal i visited surgeons who told me i had a range of illnesses from Herpes zoster to Osteosarcoma. With every wrong diagnosis, I was deteriorating and nobody would listen.
After several more months and visits to various doctors, in February this year i underwent diagnosis laparoscopy. Nothing was found; and I under went a MRCP and MR Angiograph; which both highlighted the SMA and nutcracker snydromes. I was dismissed again by doctors until I reached out to a Vascular surgeon.
My diagnosis is pretty intense. SMA syndrome and Nutcracker syndrome with a possibility of damage to the nerves near the diaphragm. Due to it deteriorating a lot since November 2018 and now; I must undergo major surgery. Major surgery that will change my life, will save my life and allow me to live. It will include Lapartomy, with a decompression of the left renal vein as it has focal stenosis and also decompression of the duodenum and a SMA transition.
I am 27 years old. My body relies on pain relief Pethidine injections for just a few hours of no pain.
Imagine waking up not knowing if you will be able to walk down the road and not be in pain. I can not eat a full meal and haven't been able to for such a long time. Yet for most people. Eating three meals a day is a normal thing. How many "normal things" can i not do?
I dream of sitting in a restaurant eating an entire meal and not being in pain. I dream of going out with my partner, my family, friends, without being in pain.I dream of being able to walk for miles and miles and not be in pain.
I dream of the day that I will wake up and never be in pain again.
I know this surgery is the first step in my recovery, althoughthe last two years have been hard, this is the real challenge for me. But i know i can do it.
The operation is a major operation and its a big risk due to my BMI being so low, but I have to take the risk. For my self, for my partner and for my family. It will cost at least 10,000 euros, which I do not have after spending about the same amount on past surgeries, procedures and scans. Any money raised will go towards my healthcare, with all receipts shown for proof.
For the last two years Ive been trapped inside my own body, my arteries feeling like they are being crushed and not being able to find a way out of this debiliating pain. Nowi do and I have to try everything to make sure this operation goes ahead- because i just want to live again.
To live. Nothing more.