Urgent endometriosis excision surgery/ hitna operacija endometrioze

Tekst na hrvatskom jeziku se nalazi odmah ispod teksta na engleskom jeziku.

Hello dear people,

I am a 23-year-old woman from Croatia who has suffered from severe cases of endometriosis and adenomyosis since being 11 years old. In the last two years, I have already had 2 endometriosis surgeries and, unfortunately, I am in urgent need of the third one.

My first surgery was done improperly in Croatia and it never cleared any disease for me and only made my health situation unbearable, which forced me and my family to pay out of pocket for my second surgery and travel abroad. Before my second surgery was the darkest period of my life. During this time, I have been an almost disabled person, not able to function in society, having pain with basic human functions like urination, bowel movements, walking and sitting, along with unbareable pain from menstrual periods that made me fear for my life.

My second surgery was done in Romania by a well-known endometriosis specialist. We paid a lot of money for the dream of having that kind of care to come true. My whole family, including grandparents, had to give their share. Endometriosis was found on my uterosacral ligaments, behind the uterus, behind the cervix, on my peritoneum as well as on one of my urethres. I also agreed to presacral neurectomy and puddendal nerve decompression procedure for my sciatica and vulvodynia pain. The recovery was very hard but I was very pleased by the results of this surgery. I started functioning much easier, started dancing again, was active at college and was ready to act like people my age for the first time in my life, meeting new friends and having dreams about future goals.

Unfortunately, only a year later, I started feeling severe pain in my bladder, my right side of the abdomen and especially my ovaries. I had a cyst rupture in March 2023 and got diagnosed with endometriomas in the ER. Now, half a year later, my large endometrioma in my right ovary has progressed to 10 cm size, while my left ovary has developed two new smaller endometriomas around 1 cm. The large endometrioma is putting horrible pressure on my bladder, colon, nerves in the pelvis and my back. The pain has been unbearable for half a month and I am receiving corticosteroid medication injections in my back every few weeks to be able to barely function during that time. Cyst this size presents serious danger to my health and life in general, since bursting could be fatal and my quality of both mental health as well as quality of life is greatly diminished.

I have very little trust in surgeons in my country since they mostly do not have proper training in endometriosis or skills that are needed for surgeries to be effective and for endometriosis to not come back ( or at least not as quickly). Also, I need expert surgery to come very quickly, which my country cannot provide for me.

I am writing this and starting this fundraiser because I can not feel like a financial burden to my family anymore, while I also believe that I deserve medical care at a very good level, medical staff to treat me like a human and not an animal like I was treated before. I want good care for my body. I am only 23 years old and this will be my third surgery and I would like to make sure it's the last one in a while. I am very sad and shocked by having to go through this again, but having poor trust in my surgeon would make the situation a million times harder. I do suffer greatly from a very aggressive case of this monstrous disease, but I still don't want my life to be defined by that. I find myself too young to stop fighting. I am much more than this disease. I am a great student, passionate dancer, advocate for women's health and rights, devoted sister, friend and girlfriend and I would like to continue being so and in a functional and safe body.

Thank You so much for Your help♥️

Pozdrav dragi ljudi, Ja sam 23-godišnjakinja iz Hrvatske koja od svoje 11. godine boluje od teških slučajeva endometrioze i adenomioze. U zadnje dvije godine sam već imala 2 operacije endometrioze, a treća mi je, nažalost, hitno potrebna. Moja prva operacija učinjena je neprofesionalno u Hrvatskoj, nije riješila niti jedan problem moje bolesti te je samo moju zdravstvenu situaciju učinila nepodnošljivom, što je mene i moju obitelj prisililo da iz svog džepa platimo drugu operaciju i putujemo u inozemstvo. Prije druge operacije bilo je najmračnije razdoblje mog života. Tijekom tog vremena bila sam gotovo invalid, nesposobna funkcionirati u društvu, imala sam bolove kod obavljanja osnovnih ljudskih funkcija poput mokrenja, defekacije, hodanja i sjedenja, uz nepodnošljive menstrualne bolove zbog kojih sam se bojala za svoj život.

Moja druga operacija bila je u Rumunjskoj kod poznatog specijalista endometrioze. Platili smo mnogo novca da bismo ostvarili takav nivo skrbi. Cijela moja obitelj, uključujući baku i djeda, morali su dati svoj dio. Endometrioza mi je pronađena na uterosakralnim ligamentima, iza maternice, iza cerviksa, na peritoneumu kao i na jednoj mokraćnoj cijevi. Također sam pristala na presakralnu neurektomiju i proceduru dekompresije pudendalnog živca za moj išijas i vulvodiniju. Oporavak je bio jako težak, ali sam bila jako zadovoljna rezultatima ove operacije. Počela sam puno lakše funkcionirati, ponovno sam počela plesati, bila sam aktivna na fakultetu i bila sam spremna prvi put u životu voditi život kao moji vršnjaci, upoznavati nove prijatelje i sanjati o budućim ciljevima.
Nažalost, samo godinu dana kasnije počela sam osjećati jake bolove u mjehuru, desnoj strani trbuha, a posebno jajnicima. Pukla mi je cista u ožujku 2023. i na hitnoj mi je dijagnosticiran endometriom. Sada, pola godine kasnije, endometriom na desnom jajniku napredovao je do 10 cm, dok su mi se na lijevom jajniku razvila dva nova manja endometrioma oko 1 cm. Veliki endometriom vrši užasan pritisak na mjehur, debelo crijevo, živce u zdjelici i leđa. Bolovi su nepodnošljivi pola mjeseca i svakih nekoliko tjedana primam injekcije kortikosteroida u leđa da bih jedva funkcionirala. Cista ove veličine predstavlja ozbiljnu opasnost za moje zdravlje i život općenito, jer pucanje može biti smrtonosno, a kvaliteta mog mentalnog zdravlja kao i kvaliteta života je uvelike smanjena.
Imam vrlo malo povjerenja u kirurge u mojoj zemlji budući da uglavnom nemaju odgovarajuću obuku iz područja endometrioze niti vještine koje su potrebne da operacija bude učinkovita, sigurna, s što manje posljedica i da se endometrioza ne vrati (ili barem ne tako brzo). Također, potrebna mi je stručna operacija koja će doći vrlo brzo, što mi moja zemlja ne može pružiti.

Ovo pišem i pokrećem ovu akciju prikupljanja sredstava jer se više ne mogu osjećati kao financijski teret svojoj obitelji, dok istovremeno vjerujem da zaslužujem medicinsku skrb na odgovarajućoj razini, medicinsko osoblje da me tretira kao čovjeka, a ne kao životinju, kako me već prije tretiralo tijekom mog liječenja. Imam samo 23 godine i ovo će mi biti treća operacija, a htjela bih da bude i posljednja za neko vrijeme. Jako sam šokirana što opet moram prolaziti kroz sve ovo, ali slabo povjerenje u svog kirurga bi situaciju učinilo još milion puta težom. Svjesna sam da patim od vrlo agresivnog oblika ove bolesti, ali ipak ne želim da moj život bude definiran time. Smatram da sam premlada da bih se prestala boriti. Ja sam mnogo više od ove bolesti. Uspješna sam studentica, plesačica, zagovarateljica zdravlja i prava žena, odana sestra, prijateljica i djevojka i željela bih to i dalje biti, ali u funkcionalnom i sigurnom tijelu.

Svaka pomoć je dobrodošla i jako cijenjena♥️