His parents, Ernilasari and Mustafa, now desperately want help to save their son’s life after local doctors told them they were unable to operate.
Because of his rare predicament, Gilang cannot be breastfed, so has to be fed milk through a tube.
And doctors have said he is not likely to live long because of his condition.
The unfortunate infant also has a condition called hydrocephalus, which is caused by a build-up of fluid in the brain.
Many babies who are born with hydrocephalus have long-term brain damage, which can cause learning disabilities, speech, vision or memory problems, or epilepsy.
Mother Ernilasari and father Mustafa did not know about their son’s serious illness until he was born by Caesarean section.