Twin to Twin Syndrome

  • US$730.00
    raised of $10,000.00 goal goal
7% Funded
8 Donors

No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities

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Dear Friends and Family,

Those of you who know our family are aware of the struggles our son Ryan and his wife Jenny have had in trying to build their family.  The pain of losing their first child Ayden Parker Harrison to Preeclampsia at 30 weeks was intense. The preeclampsia threatened Jenny's health and it took her some time to recover.  Jenny also has a clotting condition and had been put on blood thinner to treat a clot in her leg caused by her pregnancy with Ayden. In order to treat her clotting condition, she would need to take shots of Lovenox twice a day in the abdomen when she became pregnant again.

Fortunately, Jenny regained her health and was able to get pregnant again, this time with identical twins. We learned a couple months later, that the twins had Twin-to-Twin Transfusion Syndrome (TTTS), something that only happens to identical twins (twins that share a placenta). Ryan and Jenny did everything possible to help bring their twins home alive.  Several amnio-reductions helped the girls get to 24 weeks.  Adelynn was getting too much fluid and her heart started to have problems handling the extra blood.  Abigail was getting too little fluid and didn't have enough space to move around.  After a scary ride to the Twin Cities in an ambulance following an attempt to make a trip to Cincinnati to get a necessary surgery, Jenny and the girls were scheduled to have surgery on Monday, July 2nd in Minneapolis.  Unfortunately, on the Saturday before the scheduled surgery, Ryan and Jenny were given the news that there were no heartbeats.  For a second time, Jenny had to deliver stillborn children.??On July 1, 2012 we got to meet and then say goodbye to our twin granddaughters Adelynn Lily Harrison and Abigail Iris Harrison.

We are saddened by the loss of three of our four grandchildren.  We are also concerned about Ryan and Jenny having to experience such loss.  Ryan and Jenny have good insurance, but due to the special conditions of the pregnancy with the twins, they have incurred many out-of-network expenses that they will have to cover even though they spent the out of pocket maximum set by their insurer.  These costs could wipe out the savings they have built up and will make it harder for them to either try again to become pregnant, or try to adopt a child. 

If anyone reading this wants to help Ryan and Jenny, or wants to give money to the Twin-to-Twin Foundation, it would be greatly appreciated.  We have set up an account to collect donations for them, and plan to help them cover their medical expenses they have.  If we collect more than is needed, the remaining money will be donated to the Twin-to-Twin Foundation.  This is a very underfunded syndrome and research is necessary to help determine ways to improve survival rates of these special babies.

Organizer

Donors

  • Guest
  • Posted On Jul 26, 2012
  • Ryan and Jenny - we are so very sorry for the losses you have had to endure. We think of you each day and you are always in our prayers. Love - Uncle Tim, Aunt Barb, Tyler, and Spencer.

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Donors & Comments

8 donors
  • Guest
  • Posted On Jul 26, 2012
  • Ryan and Jenny - we are so very sorry for the losses you have had to endure. We think of you each day and you are always in our prayers. Love - Uncle Tim, Aunt Barb, Tyler, and Spencer.

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US$730.00
raised of $10,000.00 goal
7% Funded
8 Donors

No more donations are being accepted at this time. Please contact the campaign owner if you would like to discuss further funding opportunities