This is my story 8 years ago at the age of 22 I was struck down with painful symptoms such as; joint pain, brain fog, vertigo, nerve pain, numbness, chronic fatigue and shortness of breath I went to over 25 doctors for some answers I was either dis missed and told it was all in my head and that I was crazy or had depression, two doctors diagnosed me With "fibromyalgia" which is a similar auto immune disease to chronic fatigue.!! I did suspect it was Lyme disease two years into my illness as I had the rash and symptoms of the disease however the testing here is in accurate due to the technology not being as high advanced as over seas and the fact there is 300 strains of species for this disease and there's not even a quarter of those strains in Australia so it didn't get picked up in the tests and they told me I didn't have Lyme disease but in actual fact I do and that sent me on another 6 year journey
Mean while my health further deteriorated every 6 months with more and more disabling symptoms to eventually me resulting to feel to sick to work full time, socialize or live a normal well balanced life Eventually I was diagnosed correctly by 4 different doctors - 2 of them were Lyme literate doctors and 2 of them were medical professors practicing in Melbourne Australia. I now have "chronic Lyme disease" due to the fact it was picked up late stages if it's found out early it's acute Lyme disease and for those of you who have not heard of the disease it's basically a nightmare that is your reality its a set of bacteria infections that spread in your entire body from head to toe causing damage to your organs and your inside systems and it can kill a human if not treated, it is a debilitating disease that no human should ever have to endure, your probably wondering how do you get this disease? A human can be infected from a tick, mite, or some type of insect all it takes is to be bitten, this can happen to any one at all parks of life, there are thousands of people suffering with it.
I now cry most days missing my normal happy life sometimes I am in shock that I finally got my diagnosis and I'm still here fighting some people get mis diagnosed for over 30 years or commit suicide due to the tortue the human endures. I am now In a huge amount of debt due to my big medical bills and treatment protocols I've tried in Australia I come from a corporate back ground I had managing professional roles - I worked hard for money and have done the right thing as an Australian citizen. I do not have financial or emotional support from my family to fund this And I can't afford the treatment in Germany that can cure this disease which is a cost of $18,000 for a three month treatment package. This is the treatment I need to save my life and cure me from this horrific devastating disease that has nearly killed me or could if not treated.
A little about me!? I'm a dog lover, I'm a warm/ friendly lady, Prior to being ill I use to be very active with sports and hobbies, now my life is filled with pills/ herb tablets or liquid formulas to help me beat this disease but it's all not working I'm worse and I am terrified of continuing to live in this state I'm at my witts end and just surviving my days if i make it thru this I plan on making a big
Difference to people's lives who are suffering with this by either helping them financially or emotionally, I want to get a degree in naturopathy and medicine, and I want to travel the world to meet with other physicians/ specialists and interview them on their treatment protocols and report back to Australia with the information to get better treatment accessible to the thousands of people in the country who are suffering and can't afford the best treatment they need to save their life.
The medical system failed me and many other people who are not yet diagnosed This illness should be supported and funded in Australia and it's not due to it not being recognized, although it should and the Lyme community is working on that to make it happen. Absolutely brakes my heart, soul, spirits living with this and there's others out there also feeling the same way.
Thank you for taking the time to read my story.
Blessings to you all.!