My name is Sarah Katulle, Founder and Chairman of the TDAK Foundation. The TDAK Foundation is a fully registered Foundation under the Societies Acts of Kenya (CAP.108). As a Thyroid disease victim for 7 years, my experience in finding the right advice, treatment options and medication in Kenya has been filled with many challenges, trial and errors. This prolonged my ability to find the right treatment on good time, and in the process lost alot of time and money and eventually part of my thyroid gland to surgery. In 2014, i lost a childhood friend to this Disease who had just become a mother , a few months after i became a mother. She ailed and suffered the symptoms of thyroid disease with no doctor able to diagnose it in time. Given the fact that she was living in a different city, i was unable to know that she was suffering from Thyroid Disease, otherwise i would have helped her get help. She complained of her symptoms to her family members, who couldnt help her much as they had little to no information at all about her condition and therefore could not understand what was wrong with her. My friend's loss really shook me up and inspired me to find a way to help others avoid going through what she and i went through.
So many people in this country have fallen prey to misdiagnosis, misadvise and hence given the wrong treatment. Others in the very remote areas have been victimized and isolated due to lack of knowledge. I have come into contact and heard horrific stories of people whose lives have been negatively and permanently impacted due to mis-treatment. I therefore took it upon myself to change this notion. I formed a team that consists of
1) A Thyroid Disease and Auto immune Specialist,
2) A surgeon (both whose services i have used) and
3) Other members/directors
We decided to find a way to create thyroid disease awareness across Kenya and its region, and ensure that no one else loses their lives to a disease which if detected early can be treated.
It is sad to see how many women and men loose their lives , or suffer silently with the very unpleasant symptoms of this disease. Therefore, we bring hope to people by first assuring them that they are not alone, second, holding their hand and ensuring that they get the best fit advise according to the state and condition of the disease. For those that are not victims, it also helps alot to know and understand how to deal with people that are suffering from this disease. It is a disease, its not a curse, it is treatable when you get the right advice, and treatment.
We therefore use any platform availed to us to create awareness. And any support/help will help us reach more people and change lives. Those we have helped can attest how their lives have been impacted by the knowledge they have received through our help.