I’ve never done anything like this before, a little bit of help would be so much appreciated, but please don’t feel obligated in anyway as I know there are people worse off and I appreciate anyone taking the time to read this, any advice is just as valuable.
On the 8th to the 11th of November I was admitted to hospital with a large gallstone. Surgeons had planned to get this out urgently as it would cause a lot of pain and could cause further problems like eruption if left untreated, and would have surgery booked within 6 weeks at the latest.
As time went on pain had gotten unbearable, frequent visits to my GP with referrals back to the hospital, and increasing pain medication didn’t seem to be helping. We harassed them for weeks with phone calls, and on the 18th of February I was taken into Surgery. I woke up through anaesthesia coughing and struggling to breathe, within 20 minutes of this I had gone completely back to normal.
After waking up 10 minutes in they left me in recovery for 4 hours before alerting my partner that I had “Got out of surgery and were waking me” ( this is supposed to be an hour long procedure). A million more tests were done, which came back with nothing to suggest why. The surgeons and doctors have no idea what happened to me said they’ve never seen it happen. They told me that they will not do the surgery until they can find the cause unless it’s done through emergency surgery which will happen if my gall bladder erupts, and otherwise we will need to wait 6 more weeks. They sent me to respiratory to be treated as a COVID case (negative), did more tests on my lungs as well as my sleep. All of the tests they did came back perfectly normal, good lung pressure, blood oxygen, no fluid in lungs etc. Since leaving recovery no one knew or seemed to care why I came in to start with, a nurse asked me why I needed pain medication when I had an asthma attack - I do not have asthma. I also have a follow up in 2-3 months with the respiratory team.
I am now at 5 weeks along, 19 weeks since my first visit. Everyday is a mental and physical battle that I’m trying to get through. At 20 years old I am on more than 20 pills a day, which is no where near matching the level of pain. I have heard nothing regarding the plan going forward, they haven’t sent me for any more tests. My GP is fantastic and doing everything he can to try and get some communication, but I fear 6 more weeks will be the magic words once we finally get a response.
I’ve had to leave my job as I was getting booked off work for months at a time. Doing mundane things like the dishes is a very difficult task for me now. I’m no longer able or allowed to drive so my life is at home. We are also unable to get any financial assistance.
Thank you for taking the time to read my story. I will post updates as they come for anyone who is interested.
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