The Mason’s Family Fundraiser

Update posted by Sylvia D.A. On Feb 10, 2017

Hi everyone, I had been asked to write an update regarding the mason fund lots of people on here had donated into.

The purpose of this group is to keep people informed over where the money is going. There haven't been many financial updates on here, my apologies, simply because not much had been spent, the reason being because we were partly lucky enough to get a lot of financial support from the CQC of Brighton and partly because Dan wasn't well enough to start hyperbaric oxygen or any of the otter therapies we had in mind.

If you all remember, Dan went for one hyperbaric session £200, but he couldn't equalise the pressure in his ears and they recommended grommets. Following that he had an ear check up and they cleared a lot of gunk out of his ears. So far I had never been invoiced for this attempt so no expenses there.

Then, late October and November, he was booked in for laser therapy. Unfortunately Dan became very unwell so his initial appointment was postponed but then he ended up at the hospital at St George's so I had to cancel the second appointment as well. After that,Dan was not in a condition to drive across London for an hour each way to attend treatment.

Dan is currently on the waiting list for shockwave therapy that was recommended by the doctor in Putney and is meant to help with spasticity, I still haven't received the exact amount but I am guessing a few hundreds instead of a few thousands. Maybe Kate Memet would know the exact figure by now?

Dan's brother and I had been talking, and since Dan made such a leap in terms of pain management, we are very keen for Dan to try hyperbaric oxygen again, Dan agrees. Due to lack of time, my job, I asked Joe if he could kindly arrange an appointment for Dan on my behalf.

So basically not much has been spent yet, that explains why we currently stopped raising further funds as I think it is not fair if we keep asking for more money but don't spend it! We know that once Dan's hyperbaric starts it will be gone in no time as according to the doctor there he needs about 100 sessions, one ever day, and that doesn't include the ambulance to transport Dan there and back.

So in other words, so far we used some money for bits and bobs, like his fish oil, which we think has been very beneficial. He has an account in Putney so he can have things like massages.

When the fund was originally set up by friends it was to help the whole family, we had lost a huge part of our family income and with a new baby and toddler there were points where our home was at risk during that time. As it grew and gained publicity it became more about Dan and his uncertain journey but it would be good to gauge an opinion on a couple of thoughts:

Recently I have been considering my future travel expenses as it's costing quite a lot to visit Dan but I've been very lucky that's been covered until now by Dan's mum and my savings.

Dan and I never had a car for financial reasons so the car in particular is a big struggle for me, but by public transport it would be impossible and probably lots more. Nothing decided yet on that front, happy to take suggestions?

If Dan manages to organise the piano lesson for Chloé it would be lovely to spend some money on that too as I think it would be hugely beneficial to Dan and Chloé. Although Dan said he wants to take care of it but I'm not sure how viable that is. Again would love to hear whether people agree?

I've had so many kind offers of help over the past year and a half, including Young Sussex offering free days of nursery for my girls, family helping pay for groceries. The future is still quite uncertain financially but for me the most important thing is Dan's future is taken care of.

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Update posted by Sylvia D.A. On Jun 19, 2016

Thank you to Chloe Ashley!


DaddyCool!

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Update posted by Sylvia D.A. On May 12, 2016

Hi all!

The date has finally arrived! This coming weekend we will be fundraising at the Spring Festival at St Anne's Well Gardens in Hove. It will open at 11am, and close around 7pm and is one of the most amazing festivals here in Brighton and Hove. Very family orientated, lot's of games for the children, workshops, stalls with handmade goods as well as really nice food and live music.


We'll be there with a huge raffle, a teddie tombola, sales of handmade clothes and much more. Many thanks for all the fantastic donations!

If you are free, please come down to say hi :)


Team Mason x

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Update posted by Sylvia D.A. On Feb 11, 2016

Hello everyone,

Just a little update for those who are not in Dan's group on Facebook. Dan has now been moved to another ITU, with rehab facilities nearby so he can receive better care. From here Dan will wait until there is a space for him in Putney, where Dan will start his intensive rehabilitation program. For more specific medical updates, please join the group on Facebook, where Sabrina, his wife, posts regular updates.

A lot of donations have come in after BBC and iTV have reported about Dan's situation, thank you so much everyone. An amazing amount has also been raised offline, by a lovely friend. Thank you!

Thank you all once again,

Team Mason

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Update posted by Sylvia D.A. On Dec 24, 2015

.... To all of you who have donated, shared, tweeted and supported Sabrina and the girls in any way. Sabrina is overwhelmed by all the lovely messages, presents and support she has received so far.

It's been a busy few days. Please watch Sabrina on BBC South East here:

http://www.bbc.co.uk/programmes/b06sfkbw (11 mins in)

Read about Dan and Sabrina here:

http://www.theargus.co.uk/news/14160499.Father__42...


Please keep sharing!

Team Mason are wishing you all a lovely Christmas, please hug eachother tight, and appreciate every moment you have together.





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Update posted by Sylvia D.A. On Nov 30, 2015

A new month

Hello and thank you again for visiting the fundraising page of the Mason’s family. As you may have noticed, I have uploaded some new photos (with Sabruna's consent!).

I have uploaded new photos, so you can put an image to all the stories you have read. And it may sound harsh, but as you might see in the pictures – Dan will not be home for Christmas. The children and of course Sabrina will have to celebrate Christmas without him. In fact, Dan might not be home for another year, and even that might be difficult if Sabrina can’t convert her flat so that it will be suitable for Dan to come home. However, that’s still fairly far in the future so let’s focus on the more relevant things for now.

Just a summary of the current situation:

The head of neurology came to assess Dan. As you all know, Dan has suffered from a cardiac arrest, and whilst his heart stopped working, his brain has been without oxygen for a long time. This is called severe anoxic brain injury and that’s what Dan is recovering from. The doctor told Sabrina, that if a patient wakes up from a coma, they lose most of their cognitive abilities (thinking, personality, memories, it’s what ‘makes’ the person), but are able to move and often see. This is because when the brain is without oxygen, it protects the vital functions first, the functions you will need to survive. Simply said; you don’t need your cognitive skills to survive. Most patients end up like an ‘empty shell’ and this is of course very traumatising for families.

However, Dan’s situation is a very complex one. He is right the opposite of what I have described above. Dan is unable to move. Dan is unable to see. The specialists don’t know if he would ever be able to walk again, or see again. It is likely that he will be able to move his hands, but Dan might end up in a wheelchair for the rest of his life. This is very, very sad. The thought of Dan not being able to run around in the playground with Chloe and Amelie, is very upsetting. Dan not being able to see his own children, it is devastating. But let’s stay positive – he has beaten all the odds so far!

So, Dan might not be able to move or see, unlike most patients, most of his cognitive functions seem to be intact and he has good pockets of memories. Dan is able to hold a conversation to a certain degree.

The specialists have a complex case on their hands. Dan will need at least 12 month of very intensive rehabilitation and unlike mentioned in my previous updates, the rehabilitation centre in Haywards Heath has proven unsuitable. He will have to go to a rehabilitation centre in Putney. He might go to Haywards Heath first though, depending on the waiting list in Putney.

Now, this rehabilitation centre is private and the NHS will only fund 3 months. Sabrina will have to appeal against their decision to extend his treatment when the time is there. The cost of this could go up to £3000 per week. We don’t have the exact numbers yet, as it will totally depend on the care Dan will need. But for 9 months it will cost at least £50.000. Hopefully the NHS will extend their care, otherwise it will be a very difficult and tricky situation. When he will be transferred, isn’t certain yet, but it will probably be within the next month. Sabrina is really worrying about it, which is understandable.

*If worse comes to worst, Sabrina will have to sell the flat in order for Dan’s treatment to continue (we will NOT allow this to happen)

*Sabrina will need to pay for expensive train tickets to London

*Once the time is there, Sabrina will need to convert the flat, but how? Dan needs to come home after this journey of recovery, she doesn’t want him to be in a care home. We will do anything for her to make this happen. The children NEED to grow up with their father around them!

It is just awful for her to worry about these things. She shouldn’t have too. Christmas is coming. Sabrina and the children will not be able to celebrate Christmas with Dan this year, but let’s do ALL we can to make it happen next year. Please consider donating £5 towards a family Christmas for the Mason’s next year.

Let's just try.


All the best,

Sylvia

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Update posted by Sylvia D.A. On Nov 11, 2015

Hello! Thanks for visiting!

Yes, you are reading it right! Dan has been talking. Yesterday evening, Tuesday 10-11, he had a conversation with Sabrina. Sometimes unclear, sometimes struggling, but most important is that Dan is back with us. And even more important, Sabrina has a little bit of her Dan back. How this is possible with severe brain damage on both sides of the brain, nobody knows. The doctors don't quite understand, and we as friends don't understand it at all. But does it matter? No. One thing I read on Facebook, in one of the comments, is about the power of love. And I am pretty sure the love between Dan and Sabrina, the love between all their friends and them is incredibly strong, and I also believe that somehow this is reflecting on Dan. He is receiving all this love and it's helping his brain to heal. Nothing is stronger than love, nothing. So please continue to send your love, your positivity, your prayers, your thoughts. It does help and Dan is the evidence. Miracles do exist.

This also brings me to something else, also very important. We have raised an amazing amount of money, truly amazing. Sabrina has access to this money at all times and it currently helps her in various ways. Bills, childcare, and anything what's needed to financially survive without having a second income.

Sabrina has had a meeting with the Citizen Advise Bureau, to find out what sort of financial help she will be able to receive. To put it simple: nothing. As she is a property owner, the government can't help her. She currently receives tax credits, but these will not increase. Dan will not receive anything until he is out of hospital, which won't be anywhere in the near future. We weren't expecting this and it's come as a bit of a shock. It's all so incredibly unfair.

Dan is currently on the waiting list for rehabilitation, about 20 miles away from Brighton. He will spend around 3 months there and will then be moved to a place somewhere in London. This will increase travel costs. A car is probably needed and a car comes with more costs.

Soon Sabrina has to go back to work as her maternity pay will come to an end, but without Dan's income, she will not be able to pay the mortgage and all the monthly bills. Of course this is where the fundraising money will come in, but this isn't enough. She will need more money to simply pay the bills.

So please, please donate generously. Please help Sabrina financially survive. Worries about money are awful, but worries about your loved one and money, are even worse. We have no control over Dan's recovery, but we could try and take control over their financial situation.

Thank you,

Team Mason

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Update posted by Sylvia D.A. On Oct 27, 2015

Hi everyone,

First of all, thank you SO much for your continued support. You are all fantastic.

Last Sunday it was Chlo's party! And gosh, so many people turned up. It was a lovely party, with amazing food, lot's of energetic children and lovely guests. Chlo has really enjoyed herself, and especially the bouncy castle was a big hit. The weather was also gorgeous, the children have all played outside as well as inside. To everyone who helped us out, thank you!

On a more serious note - it was fun, but also very tough, especially for Sabrina. She was there without her beloved husband, Chlo missed her daddy's presence. We all missed Dan. It's been over a month now and although things are looking up, Dan is still in intensive care. He is now out of his coma, but it's very difficult to say how the brain damage has affected him.

On good days he smiles and can follow simple commands. On bad days his body doesn't want to cooperate. It's still very much a roller coaster and it will probably continue to be a roller coaster ride for the foreseeable future.

The future. What will it look like? Obviously that's a question nobody can answer, however Dan's Team of specialists seem to be more hopeful. Dan has beaten all the odds so far, simply by surviving a cardiac arrest, then followed by the amazing progress he has made and is still making. It will be a very slow process and it's doubtful that Sabrina will get all of Dan back. Seeing that he has beaten all the odds already, we will just believe she will!

This brings me to the next subject. Finances. Nobody wants to talk about it as it's boring and nobody's business. I do agree, but in this case it's a bit different. We have raised a lot of money already. But as it stands, Sabrina will have to go back to work fulltime again, very soon. She will not be able to take a full year of maternity leave like she did with Chlo. Going back to work isn't necessarily a bad thing as it will give Sabrina a new focus. But it's not just that, rough figures have shown us that the money which has been raised so far, won't even last for 6 months. I am talking mortgage, bills, expensive childcare, food and whatever you spend on a monthly basis.

Apart from that, Sabrina needs to start thinking about what to do when Dan is ready to come home. Of course, it won't be any time soon. He will need rehabilitation first, probably at least a year. But in order for Dan to come home, the flat will need to be suitable. Loads and loads of adjustments will need to be made. Think adjustable bath, he will need his own room, more space. Stairlifts. Extensions. It doesn't stop.

Yes.... It is not going to happen for at least a year. But Sabrina simply has to think about how and what, simply to prepare herself. Currently there are some plans which need to be written down. There will be some sort of event at some point, a raffle, auction, whatever it takes to raise a lot of money and help Sabrina and Dan through this. Watch this space!

But in the mean time, please keep donating, keep sharing and let it go viral.

Sabrina, Dan and the children really need your support.

Thank you,

Team Mason x

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Thank you Victoria, that’s a brilliant idea. Will keep it in mind :) Syl x

Sylvia D.A.

Update posted by Dec 23

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I had a thought. If Sabrina and Dan will need adjustments to the flat, is it worth emailing/calling DIY SOS and putting them forward for that? I would say they’d be good candidates!! X

Victoria Dawkins

Update posted by Dec 23

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Update posted by Sylvia D.A. On Oct 27, 2015

Hi everyone,

First of all, thank you SO much for your continued support. You are all fantastic.

Last Sunday it was Chlo's party! And gosh, so many people turned up. It was a lovely party, with amazing food, lot's of energetic children and lovely guests. Chlo has really enjoyed herself, and especially the bouncy castle was a big hit. The weather was also gorgeous, the children have all played outside as well as inside. To everyone who helped us out, thank you!

On a more serious note - it was fun, but also very tough, especially for Sabrina. She was there without her beloved husband, Chlo missed her daddy's presence. We all missed Dan. It's been over a month now and although things are looking up, Dan is still in intensive care. He is now out of his coma, but it's very difficult to say how the brain damage has affected him.

On good days he smiles and can follow simple commands. On bad days his body doesn't want to cooperate. It's still very much a roller coaster and it will probably continue to be a roller coaster ride for the foreseeable future.

The future. What will it look like? Obviously that's a question nobody can answer, however Dan's Team of specialists seem to be more hopeful. Dan has beaten all the odds so far, simply by surviving a cardiac arrest, then followed by the amazing progress he has made and is still making. It will be a very slow process and it's doubtful that Sabrina will get all of Dan back. Seeing that he has beaten all the odds already, we will just believe she will!

This brings me to the next subject. Finances. Nobody wants to talk about it as it's boring and nobody's business. I do agree, but in this case it's a bit different. We have raised a lot of money already. But as it stands, Sabrina will have to go back to work fulltime again, very soon. She will not be able to take a full year of maternity leave like she did with Chlo. Going back to work isn't necessarily a bad thing as it will give Sabrina a new focus. But it's not just that, rough figures have shown us that the money which has been raised so far, won't even last for 6 months. I am talking mortgage, bills, expensive childcare, food and whatever you spend on a monthly basis.

Apart from that, Sabrina needs to start thinking about what to do when Dan is ready to come home. Of course, it won't be any time soon. He will need rehabilitation first, probably at least a year. But in order for Dan to come home, the flat will need to be suitable. Loads and loads of adjustments will need to be made. Think adjustable bath, he will need his own room, more space. Stairlifts. Extensions. It doesn't stop.

Yes.... It is not going to happen for at least a year. But Sabrina simply has to think about how and what, simply to prepare herself. Currently there are some plans which need to be written down. There will be some sort of event at some point, a raffle, auction, whatever it takes to raise a lot of money and help Sabrina and Dan through this. Watch this space!

But in the mean time, please keep donating, keep sharing and let it go viral.

Sabrina, Dan and the children really need your support.

Thank you,

Team Mason x

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Update posted by Sylvia D.A. On Oct 18, 2015

A few days ago it was Chlo's second Birthday! Although her party isn't until next week, there was a little gathering of friends at the local playgroup. Jumping, dancing and singing toddlers, all blissfully unaware of what's going on. Chlo was her usual happy self and Amlie seemed to enjoy all the attention. And although a Birthday should be celebrated, which they did, it was also a sad day for Sabrina. Two years ago she gave birth to Chlo in hospital, and now she is visiting her husband in the same hospital. Uncertain of the future, not knowing how things will develop. It must be so incredibly tough.

As for medical updates, not too much change, but the doctors are now pretty sure Dan can hear us, isn't that fantastic!. If you would like to stay up to date with Dan's road to recovery, please join the facebook group below. Sabrina posts very regularly and shares some of her experiences she has with Dan and the children. This week Chlo has been seeing daddy with the help of the children's hospital. You can read about it in the group.

Https://www.facebook.com/groups/988917444500413/?r...

Last but not least; thank you SO much for all your continued support. I can't believe we've raised over 5000 in under a week! All the money is currently going into my accounts, but rest assured, it will all be used to help Sabrina.

That's it for now. Keep spreading the love.


Sylvia

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Dan Dan, it's Doug again. My mum asked me to donate to your page rather than buy her flowers for mother's day....Couldn't let her go without so am doing both ;-) See you tomorrow mate

Doug Thomson

Backed with £30.00 On Apr 04, 2017

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keep going ... x

bobbie martin

Backed with £10.00 On Feb 10, 2017

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Sabrina I would be delighted if you would spend this money on a bit of a treat for you and your girls. With love X

Sarah Teasdale

Backed with £50.00 On Feb 10, 2017

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keep up the good work! sending positive vibes!

Jade Morris

Backed with £5.00 On Feb 03, 2017

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Kerri-ann Percy

Backed with £15.00 On Feb 02, 2017

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Anonymous

Backed On Jan 22, 2017 Amount Hidden

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Anonymous

Backed with £100.00 On Jan 20, 2017

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Dan, I wish you further excellent progress in 2017. Keep up the fighting! And I wish the entire Mason family lots of luck, health and happiness. All the best, Mel xx

Melanie Rieken

Backed with £75.00 On Jan 06, 2017

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I've followed Dans progress from the beginning and the love and courage displayed by his amazing family is astounding. I wish you all the luck in the world to regain your health.

Marie Kraus

Backed with £10.00 On Jan 01, 2017

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Dan is the first person I worked with as a freelancer, he was a really great guy to work with and an all around solid character, and I hope this will go a little towards his recovery. All the best, Craig Moore

Craig Moore

Backed On Nov 08, 2016 Amount Hidden

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