Hi everyone! I am humbly knocking in your hearts to help my daughter Xaveione Methuselah. We call her Thala (Big bright star)
She is my 2nd child whom we waited for 10 years to arrive. She has a rare skin condition called Ichthyosis.
It is caused by a genetic mutation which affects an individual's ability to hold moisture, therefore making the skin severely dry and would crack and would later cause blisters due to infection.
Most of us are not aware of this condition yet. She has Bullous Ichtyosiform Erythroderma to be more specific, because there are more than 20 different types of Ichthyosis.
This condition is lifetime and has no cure.
All we can do is to replenish her skin with lots of moisturizers and exfoliants to be able to lessen her pain. My daughter is just 8 months old and is the only member of the family who has this. In the Philippines, this skin condition is rarely known and we have a very limited resources to manage her skin. I myself is jobless as of the moment and my family is unable to bear the prices of her lotions/dermatologist recommended creams.
Please do help my little Thala.
I keep praying that her skin won't be a hindrance for her to have a normal childhood.
May Jesus bless all of you. Thankyou.