TENACIOUS TONET

Johan Antonette, 6 years old has been diagnosed having Nephrotic Syndrome when she was 4 years old. This is a collection of symptoms due to kidney damage. This includes protein in the urine, low blood albumin levels, high blood lipids, and significant swelling. Other symptoms may include weight gain, feeling tired, and foamy urine. From the time Johan was diagnosed, she was taking 5 different medicine tablets daily. One of which is a steroid called “prednisone” that’s causing her a lot of side effects. Given her positivity and strength, she have shown improvement for two years until recently she has 4 relapses in a year. This means that her kidney weakens thus will be biopsied and will lead to either dialysis or kidney transplant. At her age, it would be very painful to see her undergoing dialysis sessions so having a kidney transplant is a choice her mom has to take. Kidney transplantation is a life-extending procedure. The typical patient will live 10 to 15 years longer with a kidney transplant than if kept on dialysis. The increase in lo ngevity is greater for younger patients. People generally have more energy, a less restricted diet, and fewer complications with a kidney transplant than if they stay on conventional dialysis.

And, given the circumstances, it is very difficult to find a donor. She is already on a waiting list but would require a very large amount of money to buy her a “kidney”. Just the kidney without the procedure and doctor’s fee was already quoted at P300,000- P500,000.

In line with this, we are together in prayers to her quest to a healthier and longer journey and adventures. We want to help extend a life of our young warrior who has been very brave fighting her own battle. In aide of her medical expenses, we are raising fund. A portion of the proceeds will go to support all her medical expenses before and after the procedure.