Hi my name is Georgina my son Harry Anthony Fish was diagnosed with Spinal Muscular Atrophy (SMA server type1)
At 2weeks old his symptoms started in womb as you all know the earlier the symptoms show the more server it is. Sadly my son lost his fight at 20weeks old and 2days. He passed away argust 16th2014.
In memory of my son I want to start my own charity events and raise money to help other SMA children & there families to make memories its the hardest thing to ever go through and if I can help one person make happy memories with there child then thats good also to just take a little bit of pressure of them.