Team Elsie
Fundraising campaign by
Chris Novell
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£4,521.00Donated So Far
The campaign owner has stopped the page from accepting further donations. Please contact them if you'd still like to donate
Campaign Story
This is our daughter Elsie Katie Novell. Elsie suffers from an extremely rare genetic neuromuscular condition called Spinal Muscular Atrophy type II. This means that Elsie will never be able to walk and her muscles will gradually become weaker, eventually wasting due to lack of use. There is currently no cure or treatment for this condition
Elsie's diagnosis did not come until she was 18 months old; this is due to the complex nature of her condition. As a baby, Elsie met all of the milestones that you would expect her to meet. She sat up, crawled, stood up and began to take her first steps all before her first birthday. Unfortunately, at around 11 months, we noticed that Elsie's movements were regressing and decided to seek medical advice. Seven months later, after a plethora of tests and medical appointments, we received the diagnosis.
SMA is a severe, degenerative disease which will, in time, affect the neck, arm, shoulder, hands and most importantly her ability to eat, swallow and breathe. More information about this condition can be found at www.smasupportuk.org.uk Whilst there are currently no treatments or cures available, there are a number of things that can be done to improve Elsie's care and quality of life, ensuring that she is as mobile as she can be for as long as she can be. All of these things are very expensive, which is why we need your help.
As Elsie is now approaching her third birthday we have some very clear fundraising goals. We have very recently committed to buying Elsie her first full size powered wheelchair. The wheelchair (Snapdragon) is designed and made by Dragon mobility. Elsie fell in love with the snapdragon at a recent trial and we could see how much this would improve Elsie's ability to explore and socialise with her friends at nursery. The Snap dragon is £23,600.
We are currently going through the DFG process to have our home adapted in order to provide Elsie with the best quality of care. This will significantly improve Elsie's accessibility at home which will involve installing a wet room, first floor lift, hoists, special bath and storage for all of her equipment. We are able to access £30,000 through this scheme but have been told that the adaptations will cost double this amount. We are trying to raise £30,000 to make up the difference.
The support we have received so far has far exceeded our expectations and we have been overwhelmed by the continued effort people have made to help us.
So far we have raised over £30,000. Our aim is to raise double this amount by the end of 2017. If you think you can help fundraise in anyway or would simply like to offer your support at events please contact us through thus page.
Thank you to everybody for their continued support.
Chris and Charlotte Novell (Team Elsie)
Organizer
- Chris Novell
- Campaign Owner
- UK
Donors
- Natalie and Graham Rose
- Donated on Dec 23, 2016
A donation to our favourite little girl instead of sending Christmas cards xxx
- Anonymous
- Donated on Dec 22, 2016
Just a little to help your beautiful daughter.All kind thoughts and good wishes for the future
NEW GoGetFunding Page for Elsie
Update posted by Chris Novell at 03:06 pmhttps://assets.gogetfunding.com/team-elsie-3/
Elsie and her Snapdragon - Update and Thank you
Update posted by Chris Novell at 09:04 pmOver the last few months we have spent a lot of time researching powered wheelchairs for Elsie. There were a number of brands that stood out and a few that we were recommended by other wheelchair users. After much deliberation we settled on the Snap dragon which was actually designed. . . . .
Team Elsie fun day 2016
Update posted by Chris Novell at 08:26 pmWe held the second Team Elsie Fun'd'ay on Sunday 4th September 2016 and raised £2525. Thank you to everyone who volunteered and attended the day. We all had a great time.
Team Elsie update - August 2016
Update posted by Chris Novell at 08:32 pmHi,It's been a while since we last checked in and updated all our followers on what has been going on. Here goes....Fundraising: We continue to have momentum with the fundraising events and there always seems to be something going on for Team Elsie, whether that is a solo effort like. . . . .
Becky Hitchcock - Jenson Button triathlon
Update posted by Chris Novell at 09:04 pmBecky is a regular part of the Team Elsie army and continues to raise funds by selling cakes at work on a regular basis. On the 17th July 2016 Becky will be taking part in the Jenson Button triathlon. Becky would be the first person to admit that this is. . . . .
Fortitudo House race for Elsie - total raised
Update posted by Chris Novell at 08:51 pmPupils in Fortitudo house from Charlotte's school took part in a Sponsored run/walk around the school field during form time and raised a total of £74.90.Thank you to everyone who took part in this event.
Exercise for Elsie- Total funds raised
Update posted by Chris Novell at 08:46 pmThe exercise for Elsie event that was held in April proved a great success!!Lyndsey Stevenson led 4 fully booked exercise classes at the body box gym in Mansfield. The classes along with a cake sale and tombola raised a total of £320. Thank you to: Stacey Charles and Lyndsey Wells
The Bellisima Ladies choir
Update posted by Chris Novell at 08:07 pmThe Bellisima ladies choir have raised £68 by contributing towards a collection jar at their fortnightly rehearsals. This is an ongoing collection and we are very thankful for their continued support for Team Elsie.
Sarah Walster's Christmas concerts - Total raised
Update posted by Chris Novell at 08:00 pmSarah is a former Cantamus member who was in the choir shortly before Charlotte joined in the 90's.Over the Christmas period Sarah did a number of concerts alongside the Nottinghamshire WI, Tuxford church, Eakring church and the Dukeries singers. All of the money raised from these concerts has kindly been
Exercise for Elsie - 16th April 2016
Update posted by Chris Novell at 08:23 pmLindsey Stevenson has kindly offered to put on an event at the body box studios in Mansfield to help raise funds for Team Elsie.The event will be held at the body box fitness studios, 4 Botany Avenue, Mansfield NG18 5NF. There will be four classes running on the day at. . . . .
Donors & Comments
- Nicola Rawson
- Donated on Dec 23, 2016
Small donation instead of sending Christmas cards
- Natalie and Graham Rose
- Donated on Dec 23, 2016
A donation to our favourite little girl instead of sending Christmas cards xxx
- Anonymous
- Donated on Dec 22, 2016
Just a little to help your beautiful daughter.All kind thoughts and good wishes for the future
- Suzy Fell
- Donated on Dec 13, 2016
This is instead of Christmas cards so merry Christmas everyone! Xx
- Steven Long
- Donated on Dec 11, 2016
- Alison Denny
- Donated on Dec 08, 2016
- Jennifer Bird
- Donated on Dec 08, 2016
- Sheila Pickering
- Donated on Nov 01, 2016
- Sheila Pickering
- Donated on Aug 20, 2016
Elsie is truly inspirational such a bright and happy little girl when you meet her you can't help but love her.
- Tina & Katie
- Donated on Jun 20, 2016
Best wishes xx
Small donation instead of sending Christmas cards