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Born into a family of five, school and home are Tamimi’s routine, alongside mobile games and drawing. Each of his family members suffer from a chronic illness and at birth, Tamimi was diagnosed with a genetic disorder of the bones, scientifically “Osteogenesis Imperfecta”. This means Tamimi can suffer hundreds of fractures without any apparent cause. As a precaution to keep movements limited, he is wheelchair bound. Now at 14 years old, he relies on a transportation service to ferry him to and fro school. The London Cab service, Singapore’s most affordable wheelchair transport service, sets his caretakers back SGD1,600 a month. To keep Tamimi in school and complete his Secondary education, we need to raise SGD50,000.
Get to know Tamimi Pohan :-
They call him Brittle Bone Boy. But beyond this, Tamimi is a bright, young artist who has long accepted his disability. He likes to be seen in his most complete form, and is proud of his own abilities. In times he is bored, his blue-haired friend Chip makes an appearance in his drawings and they go on adventures and share meals. Tamimi cannot walk, but in his self-portraits he can fly.
Chip is an imaginary character that began appearing in Tamimi’s drawings about three or four years ago. Tamimi was in a normal stream Primary School then, often bullied for his differences. Now, Tamimi attends a more open mainstream Secondary School and has a better support system in school through friends and teachers. In addition to the standard subjects, Tamimi is learning sign language and food and consumer education upon being chosen to do so by his teachers.
Tamimi’s brittle bone disease has kept him absent from school on several occasions. In 2016, a Fermur fracture kept him away from school for an entire year. Metal rods had to be inserted to straighten his legs. In 2017, a Lumber Spine fracture left him unable to stand on his own until today. Having suffered 70 fractures and counting, Tamimi fights physical pain, trauma and fear alongside monthly visits to doctors. He is on mission unto independence, and works harder catchup with his peers despite missing school. In 2018, he managed to excel in his PSLE grades, making a place for himself in a mainstream Secondary school, where he is studying currently.
His home is a centre stage for leisure activities due to limited mobility and lack of access to transport. Manga, mobile games and drawing aside, it is critical that school continues to be a part of Tamimi’s routine. It is here that he can exercise social skills, friendships, language and inclusivity.
Regarding his brittle bone disease, Tamimi is confident that his strength, in combination with Calcium, Pemidronic drip infusions, hard casts and doctor’s prescriptions will get him through his disability. What he needs help with is transportation funding so he can continue to attend school.
About the Pohan family:
Tamimi’s mother, father, grandmother, sister and domestic helper Dewi live in a HDB flat together. Both his parents work full time and suffer from chronic illnesses. They are caretakers to Tamimi, his 86 year old grandmother who suffers from dementia and their older daughter who is living with epilepsy. Everyone in the family has their own set of doctors, clinics and bills. Their domestic helper has been with the family for ten years, catering to their household and emotional needs.
The family worries about Tamimi’s safety constantly. By supporting each other, they continue to achieve their dreams.
On behalf of myself and my parents from the bottom of our heart, thank you so much for your kind generosity in helping me. May God repays your kindness with many happy returns. God bless you.
Thanks with Love Tamimi 💖💖💖💖