Sydney’s Post R.E.D Celebration Vacation

Update posted by Jerry Carchi On Sep 17, 2013

Well it was an easy day for Sydney. The incisions have been healing and no more tissue expansion. Sydney is set for her surgery on October 3rd and blood work on October 1st which will be tough on Sydney but I beleive she is tougher than that. 

Add a Comment

Update posted by Jerry Carchi On Aug 27, 2013

Well today was better than last week. Sydney is healing well and we expanded only the one side of her tissue expander. Sydney was in better spirits after we were done and went to have lunch in the cafeteria. 

Add a Comment

Update posted by Jerry Carchi On Aug 20, 2013

Tuesdays are tissue exansion day. Last week one to the insicions opened up and doctor wanted to look at it today to make sure no infection was building up. Well so far so good with keeping wound clean and no infections. We were able to start up expansion today on one of the tissue expanders. Doctor told me will have to only do one side for another 6 weeks and we set sugery for Oct. 3rd. Sydney was not to happy with the visit but got over it when one of her new friends at the hospital gave her a gift.

So back to Philly for another 6 weeks.  

Add a Comment

Update posted by Jerry Carchi On Aug 13, 2013

The link below talks a little more about Pfeiffer Syndrome and what the surgical treatment a person has to go through. 

Sydney has had 5 surgeries in her young life so far. She will be having her sixth surgery coming up in about a month after her tissue expansion has reached its limit. So far it was going well but her one incision has opened and now has to wear a bandage until her surgery.

http://www.med.unc.edu/plastic/ptinfo/pediatric-plastic-and-craniofacial-surgery/pfeiffer-syndrome

Add a Comment

Update posted by Jerry Carchi On Aug 13, 2013

This link talks about what Sydney's syndrome. Pfeiffer Syndrome is a genetic mutation that effects the genes that develope bone structure. 1 out of 100,000 children are born with this genetic mutation. 

 

 

http://en.wikipedia.org/wiki/Pfeiffer_syndrom

X
http://en.wikipedia.org/wiki/Pfeiffer_syndrom
Add a Comment

photo

So happy to have been able to help in this goal. May God bless Sydney and her loving parents.

Lisset Torres (Premier Designs Jewelry)

Backed with $225.25 On Jun 24, 2014

photo

We love you Sydney!

Lourdes and Joe

Backed with $200.00 On Jun 09, 2014

photo

Pedra Del Vechio

Backed On May 25, 2014 Amount Hidden

photo

Diana Mastricova

Backed with $100.00 On May 17, 2014

photo

"When the raindrops come tumbling, remember you're the one who can fill the world with sunshine."-----Snow White----- We love you Sydney! May all of your dreams come true! Hakunamatata, Jaysun

Jaysun, Nani, Jeff & Baby Lahm

Backed with $50.00 On Apr 28, 2014

photo

Christine Capone

Backed On Mar 27, 2014 Amount Hidden

photo

Sending you love and prayers from our family to yours.

Alberto & Rachel Canal

Backed with $100.00 On Mar 15, 2014

photo

We love you! XO

Jennifer Reyes

Backed with $100.00 On Mar 15, 2014

photo

Tia Patty

Backed On Sep 29, 2013 Amount Hidden

photo

Shang

Backed On Sep 25, 2013 Amount Hidden

SHOW MORE COMMENTS
Add a Comment

photo

Jerry Carchi

flag Jersey City, US

send a message

photo

Jennifer Reyes

Following Since Mar 15, 2014

photo

corbiv

Following Since Aug 21, 2013

photo

cserrano0601

Following Since Aug 18, 2013