Remembering Sophie
Fundraising campaign by
Jane SearbyBates
-
£355.00raised of £2,000.00 goal goal
Campaign Story
It breaks my heart to say that our precious Sophie passed away peacefully on the 4th Oct 2018 at Little Harbour Hospice in St Austell. She fought a major chest infection for over 2 weeks. She has been incredibly brave throughout her 18 years with challenges from the day she was born by emergency c sec at 30 weeks. Spending the first few months of her life in the neo natal high dependency ward she proved to us all that she's a fighter. She had Myotonic Muscular Dystrophy and Scoliosis. When she was 6 her Scoliosis became life threatening, her Spine had curved so much that the only option was Spinal surgery at Great Ormond Street Hospital. For the 6 years there was 60 trips to London, nearly 20 Spinal Operations and ongoing pain management and therapy. She has broken the titanium rod quite a few times and has needed lengthening operations as she has grown. The nerve damage this has caused means that Sophie was in a lot of pain all day even with extremely high doses of painkillers.
On March 20th 2014 she had "The biggest surgical procedure" that is performed at Great Ormond St when she had a 5 hour Spinal Fusion Operation she had a steady recovery and came home after 10days!
Although this surgery was very extreme it meant so much.A section of Sophie's spine was fused to 2 titanium rods meaning she no longer had the risk of breaking the rods. It gave her the ability to enjoy her life, and she made the most of every moment.
She battled regular chest infections, each one taking a little more effort to recover, she always managed to defy the odds and pull through. Sadly this time she was too weak and after 18 days in high dependancy and critical care at Treliske she couldn't battle anymore.
On Thursday evening she moved up to the Little Harbour Hospice and surrounded by her family peacefully took a final breath.
Throughout her nearly 18 years Sophie made a massive impact on the lives she touched. She had a hug for everyone no matter how poorly she felt. She was so happy if she could get you dancing.
I would love to raise enough money to give Sophie a fitting memorial and enable everyone she loved so much to show their love for her.
Fundraising Team
- Jane SearbyBates
- Redruth, UK
- Jane Searby-bates
- campaign coordinator
- Barripper, UK
Carer to Sophie (I’ve been asked to Admin this campaign by the family as they are all so busy with arranging the funeral, and other unpleasant things.
Carer to Sophie (I’ve been asked to Admin this campaign by the family as they are all so busy with arranging the funeral, and other unpleasant things.
Donors
- Tina cotton
- Donated on Mar 15, 2014
Keep fighting Sophie! Hoping next week goes as smoothly as possible. Xxx
- Theresa Wood
- Donated on Mar 14, 2014
Good luck Sophie - hope all goes well.
Sophie is very poorly
Update posted by Jane SearbyBates at 03:50 pmSophie has been very poorly for the last 4 weeks. She has had pnuemonia and is still struggling. The family have had to pay out for travel to and Parking at the hospital every day so please donate to help them with this expense. The Parking alone is crippling we
On their way
Update posted by Jane SearbyBates at 06:43 amJust waved the family off as they go up to London to get ready for Sophie's Surgery! We will keep things updated and let everyone know how things are going. Still in need of donations so please keep sharing and being so generous!
On their way
Update posted by Jane SearbyBates at 06:43 amJust waved the family off as they go up to London to get ready for Sophie's Surgery! We will keep things updated and let everyone know how things are going. Still in need of donations so please keep sharing and being so generous!
The Big 600
Update posted by Jane SearbyBates at 01:53 pmTo date we have had 594 people view this page! That is reallypositive! If all this who had visited had donated just £1.00 we would be so close to reaching our target! No donation is too small! We really appreciate all the support and encouragement! Thank you!
Alternative Donation Methods
Update posted by Jane SearbyBates at 12:14 pmIf you would like to make a donation without using PayPal please contact us via email Saying what method you would prefer to use and we will send you alternative payment options!
Donors & Comments
- Elle Crookall
- Donated on Oct 05, 2018
Dear Jon and Vicki. I'm so sad to hear that Sophie has passed away. She was so brave, so strong, so beautiful and such an inspiration. Sending all our love and hugs. You are constantly in our hearts, thoughts and prayers. xxx
- Tina cotton
- Donated on Mar 15, 2014
Keep fighting Sophie! Hoping next week goes as smoothly as possible. Xxx
- Theresa Wood
- Donated on Mar 14, 2014
Good luck Sophie - hope all goes well.
- Guest
- Donated on Mar 13, 2014
We really do wish Sophie all the best with her operation and pray Jehovah strengthens the whole family as you support her. Fond love x Isaiah 41:13
- janice
- Donated on Mar 13, 2014
Lots love to Sophie and mum and dad xxxx
- Callaghan Family
- Donated on Mar 11, 2014
- Roll Family
- Donated on Mar 08, 2014
We pray that all goes well for you so we can see you again soon. We love and miss you Sophie as well as all of our family in England! With love, The Roll's
- Guest
- Donated on Mar 03, 2014
- stephen
- Donated on Mar 02, 2014
Hope things go well for you all xx
- Philip Bullen
- Donated on Mar 02, 2014
Dear Jon and Vicki. I'm so sad to hear that Sophie has passed away. She was so brave, so strong, so beautiful and such an inspiration. Sending all our love and hugs. You are constantly in our hearts, thoughts and prayers. xxx