Strangere de fonduri pentru medicamente si suplimente (nr. 2) / Fundraiser for medicines and supplements #2

[scroll down for english]

Salut!

Ma numesc Dragos Stoica si am 39 de ani. Incepand cu varsta de 28-29 de ani sufar de o boala neurologica / autoimuna grava numita encefalomielita mialgica.

Aceasta boala se caracterizeaza prin:

• o stare oboseala extrem de severa aproape constanta
• resurse de energie foarte limitate
• somn neodihnitor, foarte slab dpdv calitativ
• dificultati severe de ordin cognitiv, de concentrare, atentie etc
• stari de rau asemanatoare unei gripe
• intoleranta ortostatica (circulatie deficitara a sangelui ceea ce duce la nevoia de a te opri si intinde in pat dupa 20-30 minute de la ridicarea in picioare)
• incapacitatea de a depune eforturi relativ mici dpdv fizic si / sau intelectual
• agravarea tuturor simptomelor de mai sus in urma unor astfel de eforturi mici (dupa 10 minute de mers pe jos, de lucru la calculator, de lectura etc).

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Toate acestea au dus cu timpul la incapacitatea de a mentine o viata normala - de a pastra un job, de a iesi in oras, de a realiza sarcini uzuale, banale, de zi cu zi – cumparaturi, intretinerea casei etc.

In ultimii 4-5 ani starea mea s-a agravat, fiind nevoit la un moment dat (in perioada 2018-2019) sa reduc numarul de ore lucrate la serviciu si, ulterior – incepand cu iunie 2019 – chiar sa opresc complet lucrul, in conditiile in care nu mai faceam fata nici macar unui program part-time.

Din pacate, boala s-a cronicizat, lasandu-ma in acest moment intr-un stadiu foarte scazut de functionalitate, neputand sa ma intorc la munca.

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O alta dificultate vine din faptul ca este o boala relativ noua, inca putin cunoscuta si REcunoscuta pe plan mondial / european, iar in Romania situatia este chiar mai accentuata din acest punct de vedere.

Din aceasta cauza noi, cei care avem aceasta boala, nici nu putem cel putin beneficia de formele obisnuite de protectie sociala care se ofera de catre stat in asftel de cazuri – si anume: nu ne putem incadra pe pensie de invaliditate, grad de handicap, nu exista un program national pentru ea (cum exista pentru alte boli), nu suntem asigurati CNAS etc.

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In lipsa unui tratament oficial recomandat pentru această boală, noi cei care suferim de ea nu avem altă soluţie decât să încercăm diverse medicamente, suplimente etc în speranţa de a le găsi astfel pe cele care ar putea produce un efect benefic – o ameliorare a simptomelor.

Principala sursă de recomandări în acest sens sunt mărturiile altor persoane care – suferind de aceeaşi boală – au obţinut ameliorări utilizând anumite produse.

Am alcătuit mai jos o listă desfăşurată cu astfel de suplimente care - din ce am citit eu pana acum - au cele mai mari şanse să dea un rezultat pozitiv şi care sunt cele pe care mi le voi achiziţiona cu banii obținuți prin intermediul acestei strângeri de fonduri.

De asemenea va mai trebui sa continui si un tratament – timp de cel puţin 3 luni - pentru o problema care tine de urologie (medicamentul Potaba) – l-am adăugat şi pe acesta în lista de mai jos.

1. Probiotic Kyolic Kyo-Dophilus = 190 RON

2. Probiotic Garden of Life Ultimate Care x 2 = 347 RON

3. Supliment B-uri - Life Extension BioActive Complete B-Complex x 2 = 76 RON

4. Probiotic AOR 3 = 177 RON

5. Curcumin 95 Jarrow Formulas = 136 RON

6. Probiotic Dr. Ohhira's Reg;Activ = 198 RON

7. Probiotic Life Extenstion FlorAssist = 109 RON

8. Medicament Potaba pentru 3 luni de zile = 3 x 129.89 EURO = aprox. 2000 RON (incluzand livrarea)

9. Citicolină x 2 (recomandare medic neurolog) = 200 RON

10. Probiotic Vivomixx x 2 = 200 RON

11. L-carnitină lichidă Solgar 1500 mg (recomandare medic neurolog) = 115 RON

12. L-carnitină lichidă 2000 mg Marnys (recomandare medic neurolog) = 99 RON

13. Probiotic Megaspore = 230 RON

(Am ataşat şi screenshoturi cu produsele trecute în lista de mai sus).

Preţul total al acestor suplimente şi medicamente (plus costurile de livrare si taxele vamale pentru cele care vin din SUA) este de 4.318 RON.

Pentru a ramane cu aceasta suma neta va trebui sa strang 4.643 RON (= 938 EURO; deoarece siteul percepe un comision de aprox. 7%).

Va rog sa ma ajutati, în măsura posibilităţilor, sa imi pot achiziţiona aceste produse.

Va multumesc anticipat!

Dragos

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P.S. 1

Pentru cei care preferati asa, exista si varianta de a trimite bani direct, printr-un ordin de plata, catre un cont in RON pe care il am deschis la ING (dpdv al costurilor este mai eficient asa, in acest caz nemaiexistand acel 7% de platit, schimb valutar etc):

IBAN : RO33INGB0000999900091497

Moneda: RON

Nume Beneficiar: Dragos Aurelian Stoica

Banca Beneficiar: ING Bank Bucuresti Centrala

Cod SWIFT: INGBROBU

QR Code:

(Voi adauga manual donatiile primite astfel pe contorul de pe site.)

P.S. 2

Mai multe informatii despre aceasta boala (encefalomielită mialgică) puteti gasi aici (inclusiv un reportaj din “Viaţa medicală” la care am contribuit cu un scurt interviu):

https://www.viata-medicala.ro/reportaje/afectiunil...

https://www.nap.edu/resource/19012/MECFS_KeyFacts....

https://www.omf.ngo/what-is-mecfs/?sm_guid=NDA2ODc...

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ENGLISH TEXT:

Note - For those who have read the text of my previous fundraiser (from July - August current year) you can skip directly to the last part - the need for medicines and supplements ("In the absence of an officialy recommended treatment etc"). The rest of the text is identical to the first campaign.

Hello!

My name is Dragos Stoica and I am 39 years old. From the age of 28-29, I suffer from a serious neurological / autoimmune disease called myalgic encephalomyelitis.

This disease is characterized by:

• an extremely severe state of fatigue - that is almost always present
• very limited energy resources
• restless sleep, very poor in quality
• severe cognitive difficulties - memory, concentration, attention etc
• flu-like malaise
• orthostatic intolerance (poor blood circulation which leads to the need to stop and lie down in bed after 20-30 minutes from standing up)
• inability to make relatively small efforts physically and / or intellectually
• worsening of all the above symptoms following such small efforts (after 10 minutes of walking, working on the computer, reading etc.).

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All this has led over time to the inability to maintain a normal life - to keep a job, to go out in the city, to perform routine, mundane, everyday tasks - shopping, housekeeping, etc.

In the last 4-5 years my condition has worsened, being forced at some point (in the period 2018-2019) to reduce the number of hours worked at my job and then - starting with June 2019 - even to stop work completely, being no longer able to cope even with a part-time schedule.

Unfortunately, the disease became chronic, leaving me at this time in a very low stage of functionality, unable to return to work.

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Another difficulty comes from the fact that it is a relatively new disease, still little known and recognized worldwide / at the european level, and in Romania the situation is even more pronounced from this point of view.

Because of this we, those who have this disease, can not at least benefit from the usual forms of social protection offered by the state in such cases - namely: we can not qualify for disability pension, degree of disability, there is no national health program for it (as there is for other diseases), we are not medically insured etc.

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In the absence of an officialy recommended treatment for this disease, we, the ones who suffer from it have no choice but to try various drugs, supplements etc. in the hope of finding those that could produce a beneficial effect - an improvement in symptoms.

The main source of recommendations in this regard are the testimonies of other people who - suffering from the same disease - have obtained improvements using certain products.

I have compiled below a list of such supplements that - from my readings - have the highest chance of producing a beneficial result - these are the ones I will purchase with the money raised through this campaign.

I will also need to continue a treatment - for at least 3 months - for an urology problem (Potaba) - I have added this to the list below.

1. Probiotic Kyolic Kyo-Dophilus = 190 RON

2. Probiotic Garden of Life Ultimate Care x 2 = 347 RON

3. Supplement Bs - Life Extension BioActive Complete B-Complex x 2 = 76 RON

4. Probiotic AOR 3 = 177 RON

5. Curcumin 95 Jarrow Formulas = 136 RON

6. Probiotic Dr. Ohhira's Reg; Activ = 198 RON

7. Probiotic Life Extenstion FlorAssist = 109 RON

8. Potaba medicine for 3 months = 3 x 129.89 EURO = around 2,000 RON (including delivery)

9. Citicoline x 2 (recommendation of a neurologist) = 200 RON

10. Probiotic Vivomixx x 2 = 200 RON

11. Solgar 1500 L-carnitine liquid (recommendation of a neurologist) = 115 RON

12. Liquid L-carnitine 2000 mg Marnys (recommendation of a neurologist) = 99 RON

13. Probiotic Megaspore = 230 RON

(I've also attached screenshots of the products listed above).

The total price of these supplements and drugs (plus delivery costs and customs duties for those coming from the USA) is RON 4,318.

In order to obtain this net amount I will have to collect 4,643 RON (= 938 EURO; because the site charges a commission of around 7%).

Please help me, as far as possible, to be able to purchase these products.

Thank you in advance!

Dragos

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P.S. 1

For those who prefer this, there is also the option to send money directly, through a payment order, to an account in RON that I opened at ING (in terms of costs it is more efficient, in this case no longer that 7% fee to be paid, no foreign exchange if you are sending from a RON account etc.):

IBAN: RO33INGB0000999900091497

Currency: RON

Beneficiary Name: Dragos Aurelian Stoica

Beneficiary Bank: ING Bank Bucharest Central

SWIFT code: INGBROBU

QR Code:

(I will manually add donations received like this on the tracker on the site.)

P.S. 2

More information about this disease (myalgic encephalomyelitis) can be found here (including a report from "Medical Life", a romanian newspaper to which I contributed with a short interview):

https://www.viata-medicala.ro/reportaje/afectiunile-cronice-imunologice-si-neurologice-o-categorie-de-boli-aparte-21607

https://www.nap.edu/resource/19012/MECFS_KeyFacts....

https://www.omf.ngo/what-is-mecfs/?sm_guid=NDA2ODc...