SPS is just BS! Please help Jasmine get the medical help she needs for Stiff Person Syndrome

I was diagnosed with lupus in 2009 based on my symptoms. When my symptoms became worse over the past 6 years, I was referred to a neurologist. Through months of rigorous testing and blood work, I was diagnosed with stiff persons syndrome due to my GAD65 being positive, spasms which have been happening since last August, muscle rigidity, weakness, frequent falls and ruling out multiple sclerosis, lupus and many other neurological and rheumatic illnesses. What is odd is that my father was diagnosed with this in 2008 and died in 2010. I have not worked full-time since January, my husband has not been working due to taking care of me. We have 4 children together and are now having a hard time surviving. Financially we are in a very bad place. We needs to move to be closer to my parents for support and because I want to be near them. I need more mobility devices and a stable home that is safe for my limitations and our children. I have applied for disability but we need help while that lengthy process is in its stages. I am not one to ask for help but I don't know what else to do or where else to turn. Thank you for reading, donating if you are able and sharing. From the bottom of my heart, it means so much.